- Messages
- 87
- Location
- California
Hello guys,
Since my move out of my moldy house 3 weeks ago my condition has become worse. I am
bedbound again since becoming ill almost two years ago. My symptoms that I had when I first
became ill such as severe fatigue(can barely stand up), bad peripheral neuropathy, abnormal
gait, sensory deficits, very bad sleeps and also new symptoms such as very bad brain fog and
food intolerances.
I think something is damaging my inner ear because I have this high pitch ringing in my ears
constatnly and a lot of times my hearing will go out and come back and my abnormal gait.
My peripheral neuropathy is following the same pattern as before where it started with facial
parasthesia nad numbness and weakness in my arms, and is now all limbs and my neck. My
muscles esp my calfs feel like they are constantly in a tremor at rest and I have shooting pains
and hot and cold feelings in my nerves.
The peripheral neuropathy seems to be worse in the moring and better at night and wax and wane through the day.
I am also having anxiety and daily panic attacks and find things too much for me to handle like
sudden noises and looking at computer screen or even looking outside.
The peripheral neuropathy is really worrying me because it is worsening everyday.
Does this sound like a virus causing these symptoms? I tested positive for High EBV titers and semi high HHv6.
Would it be wise to ask my doc for antivirals such as Famvir or Valtrex? Or am I too sick for these?
Or could this be due to glutamate overload and or heavy metals?
My docs don't know waht the cause is. One says its glutamate the other heavy metals. then virus.
I have some LDN on hand but have not tried it yet. I read about gabapentin(neurontin) for
peripheral neuropathy, baclofen for sleep anyone have any experience with these?
I am going to see my doc tomorrow and would like to ask him for something to help my
worsening condition as I am getting pretty desperate to stop this deteriation of my nervous system.
Any recommendations? thanks.
Since my move out of my moldy house 3 weeks ago my condition has become worse. I am
bedbound again since becoming ill almost two years ago. My symptoms that I had when I first
became ill such as severe fatigue(can barely stand up), bad peripheral neuropathy, abnormal
gait, sensory deficits, very bad sleeps and also new symptoms such as very bad brain fog and
food intolerances.
I think something is damaging my inner ear because I have this high pitch ringing in my ears
constatnly and a lot of times my hearing will go out and come back and my abnormal gait.
My peripheral neuropathy is following the same pattern as before where it started with facial
parasthesia nad numbness and weakness in my arms, and is now all limbs and my neck. My
muscles esp my calfs feel like they are constantly in a tremor at rest and I have shooting pains
and hot and cold feelings in my nerves.
The peripheral neuropathy seems to be worse in the moring and better at night and wax and wane through the day.
I am also having anxiety and daily panic attacks and find things too much for me to handle like
sudden noises and looking at computer screen or even looking outside.
The peripheral neuropathy is really worrying me because it is worsening everyday.
Does this sound like a virus causing these symptoms? I tested positive for High EBV titers and semi high HHv6.
Would it be wise to ask my doc for antivirals such as Famvir or Valtrex? Or am I too sick for these?
Or could this be due to glutamate overload and or heavy metals?
My docs don't know waht the cause is. One says its glutamate the other heavy metals. then virus.
I have some LDN on hand but have not tried it yet. I read about gabapentin(neurontin) for
peripheral neuropathy, baclofen for sleep anyone have any experience with these?
I am going to see my doc tomorrow and would like to ask him for something to help my
worsening condition as I am getting pretty desperate to stop this deteriation of my nervous system.
Any recommendations? thanks.
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