• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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treatment help

B

Breagjam

Messages
55
Thanks for the feedback. I do realize that drugs have side effects 😁. I discussed with my ME specialist and we decided for now to discontinue them. I normally have zero GI issues. Antihistamines have not helped any possible mast cell issues I have.
How long did it take you to notice a benefit from Valcyte?
 
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