Sure, I was using topamax for severe and constant nerve pain in my legs that has been diagnosed as neuropathy. The primary care doctor (not the neurologist) started me on 25 mg twice a day. The first day I took one since I got it filled in the afternoon, and within an hour of taking it I was hysterically crying and feeling unbearably hopeless and my pain was terrible. The next day, I took one and within 30 minutes I could feel my pain start to ramp up to maddening levels, and again had uncontrollable crying. Also, I could not eat at all on this medication which is very bad since I've been trying to stop losing weight. This insanity continued till the middle of the next day when my husband took me to the emergency room where I was told to stop taking the medication because it was making my pain worse. I'm going to call my doctor now and leave him a message about my bad topamax reaction.
I had high hopes and was encouraged by what the pharmacist said when we picked up the medicine, but it's not to be. I don't do well on meds like this ever. I can't take Neurotin, Lyrica, Cymbalta, Savella, or Chantix. Now I can add Topamax to the list.
I'm glad it worked well for you for a time and it's too bad the side effects overtook the benefits. Good luck with your current regimen. BTW, I don't think Neurontin is considered helpful for sleep in general. Best of luck to you!
Thank you for sharing your experience. It's so helpful to me.