Top 10 treatments for CFS list

[Mary]

@Sushi - one more question - does it help with PEM? That's my worst symptom - thanks so much for your info!

 

[Sushi]

does it help with PEM?

I am much less apt to get PEM if my overall condition is better. So, while I can't say that it helps with a specific symptom (and that would vary from person to person anyway), I have less PEM if I take Nexavir regularly. For most, it seems to take a while for the benefits of Nexavir to kick in.

 

[Mary]

Thanks @Sushi!

 

[JayS]

This might not be a great list, looking at it years down the road. But that blog in general is a very good one, written by one of the smartest patients I've seen blog over the years. There are some recent entries; But although it's somewhat off-topic, I suggest taking a look at the email exchange he had with Wessely from, I think, August 2010. It's in 3 parts. Good stuff.

 

[Marky90]

I didnt think there was any data as they weren't releasing it until they have passed through certain trials. I may have missed something though?

Both phase 1 and phase 2 is published in plosone

 

[digital dog]

would nexavir be out of the question if you cannot tolerate a lot of amino acids?
I have tried a number of amino acids orally and some have made me feel dreadful.
It is said to make sleep better so I am looking into it.