- London, UK
Hi. I wanted to know how many other people have tinnitus as part of their ME/CFS? I have it and it's been constant since I became very ill. It varies - gets a bit quieter when I am feeling better and louder when I am feeling worse. It is definitely a good predictor of how I feel generally with all the other symptoms. I would be interested in hearing about other people's experiences with it and whether it has ever gone away. As it is hardly the worst thing that has happened I don't really think about it much - I think trying to forget about it is the best treatment, anyway. I thought it was quite a common ME/CFS symptom but recently someone told me this was not the case. Anyway, I'd be interested if anyone else has anything to share.