MikeJackmin
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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This doc made a few thousand new friends today
- Thread starter MikeJackmin
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Thanks for posting this great message from Dr. David Kaufman.
To others! Don´t miss reading this! Among many interesting things, Dr. Kaufman also highlights MTHFR mutations that are more common among PWME than in a normal population according to him. For what it´s worth in the discussion about methylation issues and it´s possible connection to ME/SEID, or not. I found his observation interesting as this has been noticed by others too.
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The errors in this blog post (one example - ICD-9 code) are distressing - especially since the author is a member of the CFSAC. When CFSAC members publicly make errors such as this, it does not enhance our credibility at all.
(I do not see a way to post comments on the blog post.)
According to him - but not according to any research I've ever seen. And the 30+ ME patients whose data I have are quite normal in their prevalence of MTHFR and other methylation mutations.
*GG*
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This study will probably give us answers regarding this issue
http://www.openmedicinefoundation.org/ways-of-giving/current-funding-campaigns/