No. No generic version. Part of why it is so expensive. I think about $1000-1500 a month without insurance.
Wow - I'm in the UK so unless I can get it on the NHS, I'll have to find the money myself.
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No. No generic version. Part of why it is so expensive. I think about $1000-1500 a month without insurance.
That's a lot cheaper than I remember. I hope you're right.No. No generic version. Part of why it is so expensive. I think about $1000-1500 a month without insurance.
Remember to have your doctor put "chronic HHV-6 (or CMV) infection" as the reason for the med, not ANYTHING about ME/CFS in there.Wow - I'm in the UK so unless I can get it on the NHS, I'll have to find the money myself.
there are generics, apparently India have ignored the patent on valcyte so do make generics, this company http://www.universaldrugstore.com/medications/Valcyte+ sells the valcyte generic 100 tabs for $1050 which is the cheapest i have been able to find. hope this helps. this company requires scripts etc and initially identification proof etc too.All this can be a hassle at first but once through all the initial BS they are ok to deal with.is right! Is there a generic version?
there are generics, apparently India have ignored the patent on valcyte so do make generics, this company http://www.universaldrugstore.com/medications/Valcyte+ sells the valcyte generic 100 tabs for $1050 which is the cheapest i have been able to find. hope this helps. this company requires scripts etc and initially identification proof etc too.All this can be a hassle at first but once through all the initial BS they are ok to deal with.
I personally havent bought valcyte from them but buy my neurontin through them and its a med that u feel working from the first dose and seems just the same as neurontin i have got locally only local stuff cost twice as much. Maybe email them and find out where they get their valcyte, it should be made in india if its a genuine genric, could be other countries make genric valcyte by now too. have to google around i guess.Is there any issue over whether the drugs are genuine?
I guess this is a rich persons disease...and I am not that... Have spent every dime on this jun k... To qualify for the eligibility of the patient assistance you cannot make over 100K so I should qualify... And I canceled my med insurance bc it was draining me and not paying for a damn thing.... I couldn't pay for my doctors and medical insurance too...how insane is that... I am just not able to work any more... so im stuck. I cannot believe how much you paid...YIKES....but at least it worked!! yay..... I am prayyying that the Valcytye helps with this intense spine/body pain...makin me nutty..Both of my family member who are in remission had ME/CFS for about 5-6 years, although both had mild cases for most of that time. My daughter was seriously ill for about a year before she started Valcyte. I wouldn't say pain was a major factor for either of them, but I know my daughter had muscle aches, but no severe pain.
Valcyte is incredibly expensive. I seem to recall that it cost about $50 per pill, so $150 per day. So for two of us taking Valcyte at the same time it was over $100,000 per year --- for two years. I would certainly apply for patient assistance if you're eligible. Insurance may also cover it if the reason for treatment is given as CMV or HHV-6 infection.
Oh God NO...please tell me I am not gonna get MORE headaches....ahhhhhh I have so many migraines as it is... Hope you make it through!! How long have you been on it now?So, I am at almost 2 weeks now. Extreme fatigue has subsided and I went back to work this week (part-time). I am getting incredibly bad headaches, though. I feel ok in the morning, but by early to mid afternoon my head feels like it's being stepped on by an elephant and I am dizzy and lightheaded. Takes 4 advil to even take the edge off. I am assuming this is because, as the day goes on, I am getting more and more tired. If it continues this bad, I may take another dose off but I am trying not to. Only have a week to go before dropping to a lower dose, so trying to tough it out.
Oh God NO...please tell me I am not gonna get MORE headaches....ahhhhhh I have so many migraines as it is... Hope you make it through!! How long have you been on it now?
Oh God NO...please tell me I am not gonna get MORE headaches....ahhhhhh I have so many migraines as it is... Hope you make it through!! How long have you been on it now?
Tested positive for HHV6 EBV HSV1 n 2 with way low NK cells.... Just like all of you... Talked to Dr. K today about the Famvir vs the Valcyte and he said Famvir would run me about $900 a month ... and he said the Valcyte is the more powerful of the two...the sledgehammer. So applying for patient assistance today.2 weeks today. I was pretty sick a few days after I started for about a week, but been getting better since then. As you can imagine, it is difficult to tell what is from the valcyte and what is just ME/CFS flare at this point. Guess that means I am close to back to my baseline, which is good. Hope you are able to qualify for assistance. I feel you on having to pay for doctors yourself because your insurance sucks. What virus(es) do you test positive for?
Dr. K was telling me that Valcyte was supposed to be going generic in the "near future" but didn't specify exactly when that would be.
do you know the price of the generic valcyte when it comes out in the states?The bad news about Valcyte going generic is that Genetech won't offer Patient Assistance for Valcyte any longer. Famciclovir, the generic form of Famvir is still VERY expensive for those of us who are uninsured.
The Valcyte patent is set to expire in 2015. This article talks about a generic version being available in 2013 before the patent expires. I'm confused...
I was on the phone today with Genentech and applying for the patient asst program so I guess it is still very much available ... altho no one can tell me what the stats of cancer were in the animals... why is that???The bad news about Valcyte going generic is that Genetech won't offer Patient Assistance for Valcyte any longer. Famciclovir, the generic form of Famvir is still VERY expensive for those of us who are uninsured.