Theory about pem

Learner1

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Which Tests for mitochondrial function do you do? What to Test?
Could U give ne a Link to the Stuff that pall and Maes showed?
IT's important because i live in a Country where they do Not Accept CFS as a diagnosis
I did the MitoSwab test:

http://www.mitoswab.com/

I also had a nitrotyrosine test which is a marker for peroxynitrites. There is a European lab that does it, too.

https://www.truehealthlabs.com/Nitrotyrosine-p/health_dx_nitrotyrosine.htm

The articles I referred to are attached.

For what it's worth, its a lot easier to get treated for something other than ME/CFS. That is, most of us have a lot of other treatable ICD10 diagnoses if doctors would bother to look.;)
 

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Thank You, but ist anybody Here that can Show ne links to the mitochondrial Stuff, Not attached pls, the doctors Herr Need Something, where they could Look for themself pls
 

Learner1

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There are thousands of papers on mitochondria, and, in fact, a journal, Mitochondrion.

Not sure what exactly you're looking for.

I went to the 3 day United Mitochondrial Disease Conference 2 years ago which was very helpful in understanding whst they do, whst hwpprns whrn they're impaired, how they can be repaired and recycled, etc.

I have collected a number of papers that are useful to print and send to my doctors and would be happy to post, but if you only want links to papers, you can Google sesrch them as well as I can, since I'm not sure what angle you're interested in.
 

pamojja

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IT's important because i live in a Country where they do Not Accept CFS as a diagnosis
Actually it seems too easy to get a diagnosis for ME/CFS in Austria too. I brought that up for trying to exclude other possible causes for a systematic exclusion diagnosis. But a Neurologist - without really knowing anything about - took some standard tests (MRI, lyme..) and next gladly took that hind, gave me the ME/CFS diagnosis and send my to a psychiatrist. :bang-head:
 
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When it comes to ME or chronic fatigue you have underlying cellular stress induced by chronic neurological infection , it's being in a state of constant high stress and overstimulation . When you exercise you further stress an already stressed body and than you crash .

The trick with exercising with ME or chronic fatigue is it has to be goal oriented exercise, and there has to be a cooling off period of light exercise following heavy exercise to reduce the inflammation and cortisol release .

Get a job delivering pizzas , that was far and away the very best thing I did for my health . It took a year or so but it brought me out of fight or flight. I used to crash and get very weak if I had to interact or socialize with people and it stopped it . When I reduced stress and got in a routine of daily , goal oriented exercise it drastically improved my digestion as well. Delivering pizzas was better treatment than all the doctors , specialists , holistic doctors had to offer.

When it comes to treating ME or CFS you have to look at it as being out of shape and overstressed and treat it as such . Throw away all the herbs and supplements and just eat a simple diet (high carb, moderate protein, low fat /no dairy , little to no processed sugar , lower fiber is what worked for me )
 
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Actually it seems too easy to get a diagnosis for ME/CFS in Austria too. I brought that up for trying to exclude other possible causes for a systematic exclusion diagnosis. But a Neurologist - without really knowing anything about - took some standard tests (MRI, lyme..) and next gladly took that hind, gave me the ME/CFS diagnosis and send my to a psychiatrist. :bang-head:
Actually i am from Austria and the diagnosis ist hard to get unless You live in vienna and alteady know What You have
 

pamojja

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unless You live in vienna
Could not be further away: Vorarlberg. But as said, the Neurologist was just glad for being able to send me off with a diagnosis. Also in my eyes not worth the paper written on.

However, this diagnosis was accepted by the social ministry services for a 50% degree disability ID-card (which is just good for much better yearly tax returns, but doesn't equal the assessment for a disability pension here).
 
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Could not be further away: Vorarlberg. But as said, the Neurologist was just glad for being able to send me off with a diagnosis. Also in my eyes not worth the paper written on.

However, this diagnosis was accepted by the social ministry services for a 50% degree disability ID-card (which is just good for much better yearly tax returns, but doesn't equal the assessment for a disability pension here).
I was in three different cities, Klagenfurt, Linz, Graz, only one doc accepted the diagnosis, which doesnt Help when everybody Else doesnt recognize IT aß a real disease

At the Moment i am mostly bedridden, Intoleranz to noises and light, so IT makes IT hard for me to do my own Research...and i am on pregabalin withdrawal, pregabalin and benzos Stopped Working Out of the suddensudd my Family ist Kicking me Out on monday and dont really care, so i am homeless...

Anybody Here from Austria WHO knows where to live in Linz?...Lo fucking l
 

pamojja

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Family ist Kicking me Out on monday and dont really care, so i am homeless...

Anybody Here from Austria WHO knows where to live in Linz?...Lo fucking l
Wow, sorry to hear of this tire situation. First address in emergency losing your home would be a homeless shelter (http://www.b37.at/einrichtungen/einrichtungen/nowa.html). However, bedridden that's not even an option anymore, one usually has to leave these shelters during the daytime, and usually one doesn't get a single-bed room, and it can get noisy. However, these homeless shelters do usually have social-workers which could try to help you to find a more appropriate place to stay. Try at least to contact them as soon as possible, Good luck!
 
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Yeah i already called b37 today, and the shelter where i have to leave at the daytime is no Option for me...and the one Part of b37 where You can stay at the day doesnt have h freue rooms and a waiting list...
Just a fucked Up life
 

FMMM1

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Actually i am from Austria and the diagnosis ist hard to get unless You live in vienna and alteady know What You have
Hi there's a new blog on lobbying for funding [https://forums.phoenixrising.me/ind...e-cfs-research-theyre-working-for-you.61516/].

There's a new method that looks like a potential diagnostic test i.e. single-cell Raman micro-spectroscopy [https://pubs.rsc.org/en/content/articlelanding/2018/an/c8an01437j/unauth#!divAbstract]. There are other potential methods; check out Ron Davis's presentation at this years Invest in ME Conference.

European Union funded the development for a diagnostic test for Lyme [2 million euros - Horizon 2020]. Lets ask for the same i.e. funding for the development of a diagnostic test for ME/CFS.