it really does sound like you're in a very bad way due to CFS
oh.. it wasnt really the point i was trying to make. The point i was trying to make is the CFS (talking about canadian consensus one) is often a lot worst then those other definations of it which many dont consider real CFS. The level of CFS i experience is probably like average as far as CC CFS goes or at least 25% have this level. This degree isnt uncommon and actually right now i consider the level I have to be very very good in regards to how CFS is. Im quite functional (other than not being able to work or drive car). eg right now i dont even have one symptom... ive sat all day and done nothing (to trigger any symptoms) and feel great.
Thanks for your posts.. I will get in touch with them as Im interested to know if they truely think they could help ME (Canadian Consensus CFS).
I do know i have trouble absorbing my supplements or jsut cant convert things eg my body dont convert D2 to D3, B vitamins by mouth havent worked in my case hence i take injections. My whole bowel system works slow (i cant remember what its called, there is a medical term for it).. its slow in transit and this is what causes my constipation to which then i need supplements for. The slow transit is due to the nervous system dysfunction (also probably causing the IBS)
Some of the things I didn't know (what I can think of of the top of my head):
(a) that when I thought I wasn't stressed I was, and that this stress has many layers - once I really found out how to even tell if I was stressed (i.e. really listen to my body) it became like peeling back the layers of an onion
(b) that my body wouldn't heal until I absolutely tackled the stress first
(c) that certain supplements worked better than others (for example one brand of mineral supplement worked while the other didn't and I have no clue why but this is something the OHC have a lot of experience in)
(d) that there were scientifically validated ways to lose weight (i.e. that it wasn't just determination)
(e) that experimentation was vital in determining how often and when I ate
(f) that avoidiing all added oils in any form was essential (except for a certain amount in capsule form and then only a certain brand)
(g) that while I hadn't sorted out some issues taking probiotics was an expensive waste of time
(h) that in order for the psychological techniques to work I had to be very consistent and hard working all day every day - this was the hardest part
(i) that it was possible to detox with the help of supplements (because I kept a log of every nutrient I put into my body over a long period of time and thought this was sufficient due to books I'd read on detox)
(h) that it was possible to put a stop to the stress caused by this illness
I agree that one can be stressed and not realise it. My past includes being a meditation teacher, so Im well aware when my body etc is relaxed (the body can hold in stress) and yes stress will make any healing of anything more difficult. Stress affects immune system.
Nods.. sometimes brands of supplments work better than others, Not just brands thou..but also different formulas of vitamins or supplements.. you often can get active forms while others need to be converted by the body. In CFS many may not be converting things well. One can also get a bad reaction from one brand and not another, this can be due to the binders, preservatives, fillers, colourings etc used in tablets etc. I get a bad reaction to some common brands of magnesium, so ended up having to find one i didnt react to... the one i use now is advertised as being organic magnesium.
My weight is currently very healthy weight for my height. I was stacking the weight on not long ago due to my PCOS but ive got a grip on things again and back to doing things healthily.
I are interested about the oil thing??? I dotn know if you are refering to something I know about or not. Is that due to you having high cholestrol or due to something else? (there is good oils and bad oils)
g) are you refering to making room for the good bacteria (probotics)? eg if one has a lot of bad stuff in bowels eg yeast, bacteria, the probotics may find it hard to start to culture?? in bowels.
i) it is always hard to change thinking and ones mind set. If it was easy people would just naturally do it and no one would ever need things such as counselling. Reprogramming thought patterns are very hard due to what is going on subconsciously..
j) I think that last one is a yes or no thing... it all may depend on just how bad someones pain is. If someone is in extreme pain, it is near impossible to stop all stress. I knew one with CFS/ME to be on morphine injections due to pain being so bad and she still had a lot of pain.. But yeah.. definately a degree of stress can be stopped in this illness by doing certain things or changing ones expectations of things. The CFS doesnt generally stress me anymore as I've learnt to deal with it. It does stress me thou if im put into a situation where i know im at a risk and i think that is understandable as I dont want to end up unconscious on a sidewalk somewhere. (I have gone unconscious at times for up to 5 mins).
anyway.. im interested in what they have to say so will contact them with questions. Anyone with ME miracle cures Im interested in what they base their thoughts on. Most of what has just been said is just common sense or what people can find out throu their CFS support groups.