Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I don't know anything about your situation so this is a general comment: loss of earning potential does not equal broke in a lot of cases.another challenge, many of us have lost a lot of our earning potential. CFS has an economic impact on the patients as well.
This is the time to be philanthropic in this disease. This is your moment. This is the time your dollar makes the biggest possible difference. Hear me say that never has there been a more critical time to invest your philanthropic dollar in this disease. We wouldn’t want to you to take away from some other diseases but do it anyway. Jump Ship. Come on over because we really need this money right now to do this incredibly important work.
And we are doing the other important work that it takes to get grants through the more traditional avenues but that will take time. And time that you guys are out of. You are ready for this to happen. I know you are. Everyone is begging me for the next step and we don’t have it because we need to do the science.
====================================I was a litigator before I became ill. I can't think of what cause of action (in the legal sense) could be brought against CDC and/or Reeves. If you punch me in the face, I can sue you for damages. If police officers beat me, I can sue the police department and city for violation of my civil rights. Causes of action against the federal government are very limited, for obvious policy reasons - every citizen in this country has something they would love to sue the federal government for. So while there is no doubt that PWCs have been harmed by CDC's inaction, indecision, etc., I really don't know if there is a LEGAL reason that could form the basis of a lawsuit.
To further complicate the matter is the extraordinary cost of litigation. Yes, some cases are taken up pro bono - for example, a former classmate of mine was involved in the Dover school board lawsuit over teaching intelligent design in public schools. But that is very rare because of the unbelievable costs and no guarantee of ever recovering attorney's fees.