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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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The MEA produces a good, simplified 6-page leaflet on ME research findings free


Senior Member
@JaimeS prepared this excellent research summary for ME Action. I think they have two different audiences...ie, I'd say if you want to influence a doctor, use the one from Jaime because it's directly linked to peer-reviewed research, whereas the other one seems to mostly link to an advocacy site (which may have links to actual research, but what doctor is going to click and click and click....) ... I like that this one puts the research front and center, so I can print it out and bring it to appointments.


If there's a new patient section of this site, maybe link to both as resources??