The ME (ICC) vs CFS (Fukuda) Diagnosis Poll

[Sing]

Cort, will this poll find its way to researchers? I really want them to know what our patient group responses are. I realize this won't count as a scientific study, but as a strong indicator for which way to go with the research, I feel it makes a very valuable contribution.

 

[Ember]

Cort, will this poll find its way to researchers? I really want them to know what our patient group responses are. I realize this won't count as a scientific study, but as a strong indicator for which way to go with the research, I feel it makes a very valuable contribution.

I think this poll is very misleading. Category 1 patients, "CFS according to the Fukuda Definition (1994) but not the ICC for ME," are hardly represented. Most of them are probably too high-functioning to be part of this community.