Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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anybody started having ME as a child and is now and adult?
edit: hehe, I forgot I already asked this question minutes earlier, is nice to know you understand why!
I dream with that... the sufferer who tells his kids: "once upon a time there where no diagnostic test or treatment for my disease, you where mistreated by doctors, the government, your family, and people in general, it was hell for the sufferers" "luckily, now's just a blood test and this pills" -takes his pills-Around 4 years.
All of this cumulative suffering is the responsibility of people who have held back scientific enquiry. I hope they understand that one day.
Hopefully those who have not yet been suffering decades and those patients of the future who have not yet become sick will never have to face the prolonged decades in the wilderness that has been the fate of so many.
a quick question: has anybody have ME since childhood?
That is my experience. Very slow deterioration over 32 years.Interesting to read that the most common trend seems to be for slow deterioration...