Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Didn't the ME Association patient survey show harms?Unfortunately, even with current questions about PACE, we can't show harms.
The trial seems especially outrageous and unnecessary when there is such substantial anecdotal evidence that children (unlike adults) stand a very good chance of full recovery when they are simply allowed to build back their strength at their own rate.