Nielk
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Blog by Erica Verillo
http://cfstreatment.blogspot.com/2015/02/the-iom-report-good-bad-and-absolutely.html#comment-form
excerpts-
It is worthwhile to read in full!
http://cfstreatment.blogspot.com/2015/02/the-iom-report-good-bad-and-absolutely.html#comment-form
excerpts-
Analysis in a nutshell
Pros:
- The report clearly states that ME/CFS is a complex a "serious, chronic, complex, multisystem disease that frequently and dramatically limits the activities of affected patients.
- The report recommends abandoning the name "chronic fatigue syndrome."
Cons:
- The report recognizes that research funding has been inadequate.
- The report recommends a definition that is simplistic, undermining the statement that ME/CFS is a "complex, multi-system disease."
- By limiting diagnosis to four or five non-specific symptoms, the IOM definition, like the Fukuda definition, will capture people without ME/CFS.
- The core symptoms of the new diagnosis fit into the clinical definition for anxiety with depression.
- Exertion intolerance has been, and will be, interpreted by physicians as a psychiatric manifestation of "fear avoidance" of exercise.
- The name "systemic exertion intolerance disease" reduces ME/CFS to a single symptom.
- The inclusion of "systemic" in the name is meaningless. All diseases are systemic.
- Exclusionary diagnoses are no longer ruled out, which means patients with early MS, Hashimoto's, lupus, mitochondrial disease, Ehlers-Danlos and other treatable but hard-to-detect illnesses may receive a false diagnosis of SEID.
It is worthwhile to read in full!