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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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The Fight that Fights Pain and Prejujudice: Carol Head


Senior Member

The Fight that Follows Pain and Prejudice
February 14, 2018 by Carol Head | Leave a Comment

More than four decades ago, while a high school junior in Columbus, Indiana, I decided I wanted to run track. But I was told that girls were not allowed to compete in sports. Angry and confused—why can’t girls do sports?—I fought for and eventually won the right to start a women’s track team.

That was the start of a lifelong dedication to women’s rights—a dedication that recently found me marching with half-a-million women and men at the second Women’s March Los Angeles. Each step across the uneven pavement of downtown Los Angeles was a victory. Each step a fight. Each step filled with pride—as a woman, as an advocate and as victor over my illness. And I was proud to march with my two feminist sons.

Carol with her two sons at the Los Angles Women’s March.

Thirty years ago, I was bedridden due to Myalgic Encephalomyelitis (ME), a disease often called Chronic Fatigue Syndrome (CFS). That is why I feel blessed today to have a dream job: President and CEO of the Solve ME/CFS Initiative, which is fighting to find treatment and a cure for this disease.