EddieB
Senior Member
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- Northern southern California
Just did Enterovirus and echovirus testing, sample drawn by Labcorp, sent to ARUP, cost about $800.
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Hmm.. Seems like it's readily advertised on his foundation's website and available for purchase: https://www.evmedresearch.com/store/p1/Enterovirus_Protein_(VP1)_Immunoperoxidase_Staining.htmlThat’s what we were asking for, and told no, only for current/previous patients. But call and give it a try, seems like my doctor couldn’t get anywhere.
That is after insurance or with no insurance?Enterovirus and echovirus testing, sample drawn by Labcorp, sent to ARUP, about $800.
My insurance would not cover it.That is after insurance or with no insurance?
Like I said, my doctor couldn’t get anywhere, maybe you can do better.Hmm.. Seems like it's readily advertised on his foundation's website and available for purchase
I'm from Germany and it looks like my insurance would cover these tests.
@Hip What do you think, would this testing at IMD be sufficient or do I have to find another lab which covers all relevant serotypes?
Is there anybody who got tested at the Hellenic Pasteur Institute already?There is also a coxsackievirus B antibody neutralization test available at the Hellenic Pasteur Institute in Greece for €68. This covers CVB1 to 6.
Is there anybody who got tested at the Hellenic Pasteur Institute already?
I just found that Erlangen University (Germany) also can test Coxsackie B1-B6 as neutralization test: https://www.virologie.uk-erlangen.d...e/dateien/Diagnostik/Anforderungsformular.pdf (first page, left side)
Even we Germans must have a prescription from a doctor to get tested; you cannot just send your blood to a University lab like you can in the case of IMD.
Yeah, look at this: https://www.kgu.de/fileadmin/redakt...ungsverzeichnis/LV_Virologie_August__2019.pdf
The Echo-Virus testing as well as Coxsackie B1-5 in Frankfurt are all NT (= neutralization test).
Short update: At the moment it is not posible to get tested at Erlangen or Frankfurt because they ran out of capacity due to Covid-testing. I'll ask again in 4 weeks and then I'll ask, too, if it is possible to send blood from outside Germany and what the prices are. Give me a reminder in 4 weeks if I don't give you an update.
No. I did not ask again. I have an appointment with my neurologist in September and before this I will talk with the Frankfurt lab if Coxsackie testing is possible again. It makes no sense for me to ask now because it's a long time till September in Covid-times. Besides this, Germany ramps up his Covid testing, so I doubt that they have capacity for Coxsackie testing at the moment and I fear they will have even less capacity in September.Any update?
I'd like to chime in on the Quest side of things. So, I have not had any success using the enterovirus ARUP test codes for Quest you find in the CFS Roadmap. If you go through Quest, I think now they put it in as Test Code 39651 "ARUP Laboratories Miscellaneous Order". And then the Quest people make a note of the ARUP lab test codes to be tested. It's been this way from at least June 2020 to now August 2020.It's really tricky. Lots of people use LabCorp or Quest to order the ARUP tests, but very often LabCorp or Quest screw up and do the test in-house (which is the wrong test). See here.
Coxsackie B 3 and 4, and Echovirus 11 have been a massive part of my condition. So, I'd say 1000% it's a necessary test.So I’m wondering if it’s worth it to pursue testing for coxsakie and enterovirus