Temelimab

Dude

Senior Member
Messages
120
I signed up for the Facebook long covid swiss group. There are several users reporting about the temelimab trail. Sounds very promising. People that return to work after the infusions etc. Iam wondering how many og mecfs people does those reactivated herv viruses have. Does anybody had that checked that? I dont think its exclusive for the covid mecfs type?
 

Osaca

Senior Member
Messages
283
I signed up for the Facebook long covid swiss group. There are several users reporting about the temelimab trail. Sounds very promising. People that return to work after the infusions etc. Iam wondering how many og mecfs people does those reactivated herv viruses have. Does anybody had that checked that? I dont think its exclusive for the covid mecfs type?
GeNeuro (Temelimab) had done some collaborative work on this. It currently seems like HERV-W ENV doesn't seem to play the same role in ME/CFS as it does in Long-Covid and acute Covid, see https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7065355/ vs https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9647063/. I believe Nath thinks the same (he's done research on HERV-K and has also collaborated with GeNeuro). Iwasaki has also done research on HERVs so there's a lot of potential knowledge.

So I think it's very sensible that they focused their trial on Long-Covid. Who knows if that'll hold up. One shouldn't forget that the majority of trials happening are recruiting relatively healthy patients that haven't been sick for very long. As such anecdotal positive reports aren't surprising.
 
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