if you have been tested for xmrv and are positive- can you please describe your cfs severity, main symptoms, and daily life??? It would be really helpful for many of us who have not yet been tested to hear about your experience with CFS.
if there is already a similar thread like this, can someone point it out to me?
I am wondering if I might be xmrv positive. I've had cfs many years now. at my sickest, for several years- it was a big struggle to just do the basics of caring for myself (cook, clean, errands, etc). i would sleep 15-18 hrs a day. that was real fun-NOT! i am much better now. only sleeping/resting 10 hrs a day. but still have good days/bad days. still get crashes/PEM after too much exercise. last one lasted 3 weeks.
I will most likely get tested for xmrv eventually.
thanks and best wishes,
bigmama2
if there is already a similar thread like this, can someone point it out to me?
I am wondering if I might be xmrv positive. I've had cfs many years now. at my sickest, for several years- it was a big struggle to just do the basics of caring for myself (cook, clean, errands, etc). i would sleep 15-18 hrs a day. that was real fun-NOT! i am much better now. only sleeping/resting 10 hrs a day. but still have good days/bad days. still get crashes/PEM after too much exercise. last one lasted 3 weeks.
I will most likely get tested for xmrv eventually.
thanks and best wishes,
bigmama2