Thou from some of your symptoms dysautonomia may be involved, I think you have far more then just that going on.
I definitely think so, too. I wouldn't be comfortable attributing everything to that at the moment with positive ESR, CRP, D-Dimer and episodes of incontinence.
Perhaps more importantly, dysautonomia and CFS/ME are (for the most part) diagnostic dead ends and there is little to gain by being diagnosed with either (and a lot, potentially, to lose).
CFE/ME, at best, might get you a clinician that's comforting trialing you on anti-virals or immunosuppresants (if you are lucky enough to have access to one in your area; they are few and far between).
For dysautonomia, after going to the trouble of finding an autonomic specialist and going through the tilt table testing you will likely be told that your dysautonomia (if it's comfirmed) is secondary to some other condition and advised to drinks lots of water and follow a high sodium diet. Do you need to spend thousands to hear that advice?
I strongly suggest you get refered to a specialist to rule out systemic mastocytosis.
I've thought about this one too, actually. The specialist in question would be an immunologist and the initial test is serum tryptase but a bone marrow biopsy is the gold standard.
Just be aware, however, that the incidence of primary systemic mastocytosis is about 1 in 100,000 per year whereas CFS/ME is 235 / 100,000, if
these statistics are still correct. I used to hate getting excited about something that could be a possibility only to dig up the statistics and find that the disease is, as doctors would say, 'vanishingly rare' (and really hard to test for).
Not that it's not a possibility and you mightn't want to be tested for it, but I'd advise following your medical team for a while unless they're still coming up with nothing as they'll probably consider more probable and easy to explore diagnoses first.
