mango
Senior Member
- Messages
- 905
via prof Leonard Jason on Facebook:
Survey on the Name and Criteria for ME or CFS
There is considerable debate regarding terminology and case definitions of ME and CFS. This issue directly affects us, so we feel that it is important to obtain information from patients, family members, clinicians, and researchers. We hope that this brief survey will shed some light on how people feel about these critical issues that face our community. We plan to make our results known to the larger community as soon as possible. Leonard Jason's team at DePaul University will help analyze the survey and make the results available to the larger community.
The survey will take approximately 15 to 20 minutes to complete. You will have the opportunity at the end of the survey to provide any additional comments about your opinions that were not captured in the structured questions. In order to take the survey, please click on the link below.
Sincerely,
Jill Mclaughlin, Pat Fero, Mary Dimmock & Leonard Jason
https://redcap.is.depaul.edu/surveys/?s=AA33WKLPJH