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Sudden Viral Onset. Any similar experience/advice

Messages
3
Hey All, new member hear to this incredible supportive community. Very concerned with symptoms I've been having and GP/specialists are unsure as well. I've got complete and utter exhaustion. Done so much googling and CFS/ME seems likely and frightening match.

Around 6-7 weeks ago I started to get tingling sensations in my leg, this was accompanied by what I would describe as lower abdomen pressure/sensation as well as some genital pain. I attended GP and sexual health clinic and bloods/urine returned nothing of concern.
These sysmptoms were accompanied with intense night sweats, fever, chills, etc. My torso would run quite hot. These symptoms waxed and wained but were below the belt so I continued to go to work and play sport.
Eventually I did get a head cold, sniffles, cough which eventually resolved.
The leg tingles returned and developed into leg ache and fatigue.
I started to have trouble focusing at work, noticing myself more physically fatigued, intolerance to alcohol, and sudden hitting a wall/brain fog in social settings. I'd be out to lunch and suddenly would glaze over. This has been subtle over the last 5 weeks or so.

I've seen an infectious disease specialist who didn't return anything on his serology for EBV/CMV, HSV 1 & 2, among other things but has me on Vaclovir as this certainly feels like a viral cause.

The Valclovir seems to have subsided the tingling and pain in lower spine but leg muscle soreness and full body fatigue remains. I've been in bed the past week.

I've taken the last week off work as I've felt extremely fatigued and hardly able to leave bed let alone home.

Does anyone have experience with something viral that started or sounds like this? I'm quite frightened this has quickly developed into CFS - like a switch. Can it be reversed or is the viral damage done?

I've read the accounts of CFS and I'm very sorry to those suffering for so long and not getting the attention or acknowledgement they deserve.
 

Hip

Senior Member
Messages
17,858
ME/CFS usually begins after a viral infection. Sometimes people can be hit with full-blown ME/CFS in a matter of days after an infection (rapid onset ME/CFS); in other cases ME/CFS appears more slowly over the months that follow the infection (gradual onset ME/CFS).

The viruses linked to ME/CFS are coxsackievirus B, echovirus, EBV, cytomegalovirus, HHV-6 and parvovirus B19. So these are the viruses ME/CFS specialists will usually test you for.

ME/CFS specialists will look to see if you have chronically highly elevated antibodies to these viruses.

To be tested fro CVB and echovirus, enterovirus expert Dr John Chia recommends using neutralization-type antibody tests, as other types of antibody test like ELISA, IFA and complement fixation he says are not sensitive enough.

Abdominal pain is often an indicator of coxsackievirus B or echovirus — see the acute enterovirus symptoms list on this page.
 
Last edited:

Rvanson

Senior Member
Messages
312
Location
USA
ME/CFS usually begins after a viral infection. Sometimes people can be hit with full-blown ME/CFS in a matter of days after an infection (rapid onset ME/CFS); in other cases ME/CFS appears more slowly over the months that follow the infection (gradual onset ME/CFS).

The viruses linked to ME/CFS are coxsackievirus B, echovirus, EBV, cytomegalovirus, HHV-6 and parvovirus B19. So these are the viruses ME/CFS specialists will usually test you for.

ME/CFS specialists will look to see if you have chronically highly elevated antibodies to these viruses.

To be tested fro CVB and echovirus, enterovirus expert Dr John Chia recommends using neutralization-type antibody tests, as other types of antibody test like ELISA, IFA and complement fixation he says are not sensitive enough.

Abdominal pain is often an indicator of coxsackievirus B or echovirus — see the acute enterovirus symptoms list on this page.


Took 5-6 hours for me to get sick from whatever causes ME/CFS. Ate chicken-teriyaki at 8 PM and woke up sick as h**l at 2 AM. Spent 10 months getting better, enough to go back to work. Had to crash every weekend to make the next week.

June 1996 at 40 years of age. Have never totally recovered. Covid-19 does not scare me at all. And speaking just for me, I'll never take the injections as my immune system has never allowed me to get more than a mild cold. I am not ever going to be bedridden like that again, else I will indeed die. Lots of doctors and nurses are not taking these "injections" either. 6500 people dead from the injections in the USA alone. Like these doctors, I'll pass on injections.

For the rest of you good folks, please make your own choices, as I have for my own health. It's not for me to judge anyone here. My gut instincts are telling me "NO", so I am going to go with that. I do wear a mask, and will until the ban is lifted, but only because I can't take a chance on anyone else becoming ill with whatever this virus is..
 

Reading_Steiner

Senior Member
Messages
245
After a few months you will probably know whether it is for sure, some people e.g. Michael Mayne say they had similar experience but it stopped after about 1 year. Its hard to be sure, people that are stuck with it are likely sceptical of claims that it just switched off by itself, some say there is a different thing called post viral fatigue, but thats only meant to last for weeks or months not years. book

It is a scale though so a person can range from mild to very severe. I will not be scared of the covid thing either, I have passed by thousands of people and not caught anything, I have seen no examples in my local community / personal sphere of associations of anyone with the symptoms unique to the virus. There was one person receiving emergency medical treatment outside a supermarket but it was an elderly person, clearly already frail and suffering from the sapping effects of having to wear the mask, I overheard the paramedics saying their O2 sat was normal.