Hi, does anyone get subcutaneous immunoglobulin injections in the UK privately?
If so where from, a Dr? Or, do you buy it yourself? Thanks
If so where from, a Dr? Or, do you buy it yourself? Thanks
subcutaneous immunoglobulin UK
- Thread starter Treeman
- Start date
Want to follow this. But I believed they were IV only. If you have more info let us know. My igm is low and my subclasses could well be for igg too.
Done some more research into this.
Can be purchased from the usual places.
Ivig isn't necessarily superior. If you have an autoimmune condition then scig unlikely to have any effect.
Study quality is poor. 5 studies done. Only one of them is any good. That study showed immunglobukij therapy worked well for the majority of severe ME patients. About 50% returning many to normal life. However in some patients it had zero effect.
Seemed to work really well for POTS and conditions like that. But higher doses required which means insurance only. Or in the UK 15k per round at breakspear.
Potential reactions include anaphalyxis and allergies for the ME body special repsonse to almost all things!! Could make MCAS worse initially or long term.
Anecdotally on twitter can't find anyone who's taken it but prior to 1988 it seems ivig was used a lot in America according to a few tweets and that it was pulled when pysch came along.
Haven't got much more info as yet. But the meta analysis said severe pwme with severe post exertional malaise symptoms and low igg total would it seej have a very high likelyhood of benefitting from this treatment.
One anecdotal tweet on twitter says immunoglobulin therapy would work better for entereoviral infections. But I don't see how that can be the case.
Can be purchased from the usual places.
Ivig isn't necessarily superior. If you have an autoimmune condition then scig unlikely to have any effect.
Study quality is poor. 5 studies done. Only one of them is any good. That study showed immunglobukij therapy worked well for the majority of severe ME patients. About 50% returning many to normal life. However in some patients it had zero effect.
Seemed to work really well for POTS and conditions like that. But higher doses required which means insurance only. Or in the UK 15k per round at breakspear.
Potential reactions include anaphalyxis and allergies for the ME body special repsonse to almost all things!! Could make MCAS worse initially or long term.
Anecdotally on twitter can't find anyone who's taken it but prior to 1988 it seems ivig was used a lot in America according to a few tweets and that it was pulled when pysch came along.
Haven't got much more info as yet. But the meta analysis said severe pwme with severe post exertional malaise symptoms and low igg total would it seej have a very high likelyhood of benefitting from this treatment.
One anecdotal tweet on twitter says immunoglobulin therapy would work better for entereoviral infections. But I don't see how that can be the case.
Do you have a link? Thanks
Got some extra info: