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I am interested in finding out the experience of those who have tried subcutaneous immunoglobulin. Specifically those patients who have normal IgG levels.
Response rates, side effects, length of treatment, etc.
There is sparce evidence for use of IVIG in ME/CFS. But the rituximab trials raise the possibility that there could be autoimmune etiology in subset of ME/CFS patients.Just curious - what indication(s) would the subcutaneous immunoglobulin be administered for (since you are asking those who have normal IgG levels)?
Do you know how long the patient was treated with Gammanorm?I think this film is available in English somewhere. As far as I know one of two in this movie recovered from bedridden to almost 100% (working full time) with 0.825g of GG weekly. I think she got 5ml of Gammanorm.
Do you know how long the patient was treated with Gammanorm?
Thanks for the info. I am planning on trying SCIG in a couple of weeks. Fortunately, my insurance company will cover most of treatment cost. My rheumatologist also has experience using rituximab. I am a little hesitant about trying it since Dr Chia thought my symptoms triggered my Coxsackie virus. I haven't been able to definitively disprove viral persistence.As far as I know she stills gets it. If it works it won't cure ME, but it may lessen symptoms.
Do you know if a case study was ever written regarding these patients?As far as I know she stills gets it. If it works it won't cure ME, but it may lessen symptoms.
Do you know if a case study was ever written regarding these patients?
In other autoimmune diseases such as CIDP or MMN, patients usually get prescribed a loading dose then a lower maintenance dose. Both are based on weight (kg).i took low dose subQ immunoglobulin for several months. i did not notice any improvements that i could attribute specifically due to that, but my doc says it works slowly in the body. i know of someone who has been in remission for 30 yrs while taking IVIG 25 mg a month. her insurance pays for this.
I have high igg levels of parvovirus and high levels of ebv. Been on av's for over 2 months and they have helped some(vertigo, brain fog, eye focusing) but still in so much pain! All over inflammation pain/fibromyagia. Hard to know if its ebv or parvo pain. Wonder if injections (low) would help pain? It sounds like insurance wont cover it. Injections cost less and may be helpful even 1x per week?in people symptomatic with Parvovirus, IVIG is used to heal it, even when the patient has normal IGG levels. Why isn't this approach used for other infections like EBV, CMV, HHV6 etc?