• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Stunted Growth

Messages
30
Hi,

I have been suffering from CFS almost my whole life. I have really messed up genes as shown in my 23andMe report and I think the mutations were "activated" when I had a vaccine injury at 18 months old. It also shows mutations in my mitochondria.

At 24 years old, I have very thin bones (my wrist is even thinner than my 8 year old cousin) and have very little muscle mass (I don't seem to have any oblique muscles around my waist and my pelvic bones are protruding quite abit, my ribs can also be seen very clearly. My spine can be seen very clearly through my back and my shoulder blades protrude as well.)

I am very sure I am eating enough I eat about 5 caloric-dense meals a day and never let myself go hungry. I am 48kg (105lbs) and 1.71m (5'6").

Is there anyone facing the same problem?
 

Daffodil

Senior Member
Messages
5,873
I went through a phase where I became quite thin but later on, entered a phase where I gained weight. I think it has something to do with the way the disease affects hormones/glands ....gut flora....something lol

have you seen a CFS specialist?

since you had a vaccine injury at 18 months, did you show signs of autism etc?
 

wastwater

Senior Member
Messages
1,267
Location
uk
I have a genetic disorder and probable vaccine reaction around 18 months that I see as a viral reaction,I think it maybe linked to metabolism mitochondria and immune inherited faults
 
Messages
30
I went through a phase where I became quite thin but later on, entered a phase where I gained weight. I think it has something to do with the way the disease affects hormones/glands ....gut flora....something lol

have you seen a CFS specialist?

since you had a vaccine injury at 18 months, did you show signs of autism etc?

Hmm, yea my gut flora seems to be horrible and I have multiple allergies which include quinoa, rice and potatoes and many more.

I'm seeing a naturopathic doctor who has a plan for me regarding my genetic mutations. Did you see a CFS specialist and did it help you?

Hmm, I have always felt that I had very mild autism but I can't really confirm it with all the brain fog/fatigue and restlessness. I've told some of my friends who don't think I am autistic but I have one friend that notices that I have some ADD symptoms, but that might be due to all the discomfort I experience in my body (brain fog, mylgia). On my good days I feel that I can focus on a single task very well though (of course, I start to get really tired around 30mins).
 
Messages
30
I have a genetic disorder and probable vaccine reaction around 18 months that I see as a viral reaction,I think it maybe linked to metabolism mitochondria and immune inherited faults

It might be the same for me, I have mutations in my detox pathways, which might have caused the high fever and fits due to my body not being able to detox itself from the vaccine, which others probably could.
 

Daffodil

Senior Member
Messages
5,873
@RinkyInky I for CFS after "mono" when I was 22. I am now 45. I became so sick a few years ago, I was bedridden and in total agony. I am better now, after seeing dr. Kenny demeirleir. he is the best specialist for this disease.
 
Messages
30
@RinkyInky I for CFS after "mono" when I was 22. I am now 45. I became so sick a few years ago, I was bedridden and in total agony. I am better now, after seeing dr. Kenny demeirleir. he is the best specialist for this disease.

That's great, glad that you are better.

May I know what he used to help you?

Cheers
 
Messages
30
Hmm that's interesting. What was your experience and how did your doctor come to the conclusion it was bacteria/ which kind of antibiotics to give you?