@Violetta Kolosova
Hello Violetta,
1) Would you be able to give me the address to Dr Maltsev's clinic in Kyiv please? (I was unable to find it, because there are several Maltsev named doctors in Ukraine.)
2) Do you know how often Dr Maltsev treats CFS/ME? There are millions of sufferers around the world. And thus millions of parents and children who are desperate for relief.
3) I am a bit puzzled because if Dr Maltsev has success, then surely his protocol would become known in other parts of the world. He does not seem to have joined the international specialists.
4) I would like to call his clinic and find out what they are offering. Did they do all your testing once you went over to Dr Maltsev? And did you have to stay in Kyiv, or were you able to return back to Russia and continue treatment there? Lodging in Kyiv is expensive.
5) If you could offer a few words about the facilities in that clinic in Ukraine, I would appreciate this.
6) I read all your earlier posts from last year and so on, and I very happy you feel better.
7) I know you understand that this situation with this illness is critical, as there is no standardised treatment. Skepticism is normal, too, however. We have travelled all over the world for treatment and the result is nothing. We did not travel to Ukraine, because I know how hard it is for the Ukrainian citizens to get good medical help, and I know the strains on the system because of the war. But if you would be so kind as to let me know the name of the clinic, or their address, or even Maltsev's first name, I would be grateful. Thank you very much, and I will look into your website too. It looks very professional.
Hi!
Sorry for such a late answer.
1.
Here is a link to the clinic's website, in which he is currently working. In Russia and Ukraine, the practice of communicating with a doctor directly before the consultation is not common, I even do not have his personal phone, so I give the clinic contacts for an appointment. online consultation is also possible.
http://vivereclinic.com/
Maltsev Dmitry Valerievich
2.
Many people whom Maltsev tried to treat did not withstand the difficulties of treatment, and from here spread negative reviews on the Internet. Many people can not afford his treatment financially, many can’t cope with the idea that there will be exacerbations and no relief at the treatment courses (long and difficult), and that relief will come only months after full courses.
Also, many people cannot realize that there are cases when you cannot be cured 100% - in cases like mine, with genetic so-called minor immunodeficiency, but you can only get more or less stable remission and that if necessary you will have to return to immunotherapy. Many do not want to risk, because. prescribed drugs are difficult to tolerate and have side effects.
Therefore, I can honestly say that only a few are able to undergo treatment. Since people often quit his treatment, it’s hard for me to say who could really complete all the courses and get remission. Negative reviews are written mostly by people who have not overcome the treatment - physically or morally or financially. From my forum I know three people who received remission with active herpes type 7 and immune problems, similar to mine, and eventually got rid of CFS.
3.
There is not and cannot be, in principle, no single protocol. Immunology is not the branch of medicine where any protocols are possible. This is a completely different paradigm. Treatment of immune problems is then successful when it is as personalized as possible, i.e. individualized. All drugs are selected on the basis of tests of each individual. Therefore, it is dangerous to share treatment regimens of strangers, give your schemes to others and use other people's methods on yourself.
Since what is well suited to one person according to their tests, it is completely inappropriate and harms another. I consider it a huge mistake of Western medicine as a concept in that medicine is looking for some kind of uniform treatment in such a strictly personalized branch as immunology. I believe that the future is generally behind targeted immunotherapy, when we can clearly identify the specific individual breakdowns in the immunity of each individual person and eliminate the problems in immunity that are only inherent in this person only with drugs that are necessary for him. otherwise, we are like trying to wear someone else’s dress, which does not suit us.
4. no. As I said above, the treatment is chosen individually,according to your test results, state of health and diagnosis. I can only
approximately name the range of drugs which the doctor operates with; there is nothing particularly new to immunology here.
Yes, most often I left to be treated home, but by the fact that in the USA and Europe no one will be treated according to his schemes , if you e.g. need IVs - this can be a problem. Also, some drugs to be exported by patients from Ukraine since they can not be bought outside. Some drugs are also prescribed off-label.
living in Kiev is not so expensive if you live in cheap hotels or on apartments for rent.
5.
There is nothing special in this clinic, the clinic is small, new and quite expensive. There is a small day hospital, an anesthesiologist, and a rehabilitologist who works with children who are on immunotherapy. In addition to this clinic, Maltsev does a lot of science, teaches, works at the Bohomolets Institute, and still works in some budget hospitals.
There is nothing special in this clinic, the clinic is small, new and quite expensive. There is a small day hospital, an anesthesiologist, and a rehabilitologist who works with children who are on immunotherapy. In addition to this clinic, Maltsev does a lot of science, teaches, works at the Bohomolets Institute, and still works in some budget hospitals. Foreign patients are provided with an interpreter, if they are provided with a full package of medical tourism services upon special request and at an additional cost. There is also a service of taking tests at home and delivery to the laboratory, same for delivering results.
6.
thank you very much! I am glad that I could overcome all this long trial. unfortunately, I recognize the fact that my immune system from birth was unable to work 100% normal, but at least I know the pattern of my own immunity in more detail and I hope that if the disease returns, I already have a possible idea how fight. I hope that my immunity will not do me new tricks!
7.
as I said, I see this problem completely differently. I believe that there is no single disease called CFS, for which Ron Davis is looking for a single cause and a single treatment. There is a well-known infection. Someone has herpes, someone has an echovirus, someone has a Coxsackie, someone has mycoplasma, etc. but this is not some new thing unknown to science. If this infection falls into poor immunity or, if we are already carrying the infection , the immune system falls under the influence of a trigger or is degraded inborn - develops a state of CFS. There are hundreds of immunity disorders, the so-called small immunodeficiency. There are still very few known and available for correction.
The problem is one, it is immune dysfunction. but the specific disorders in the immunity of different people may be different. That is why you can never find a single cause of the disease. Therefore, the only thing that is common in this disease is damage to the immune system. the rest is all different. one can even say that there is no single disease at all. CFS is a rather a collective term for many problems with immunity,
which unfortunately is very poorly investigated
There are no signs of war in Kiev, at least for ordinary citizens they are not visible. I can very easily enter this country, despite Russian citizenship. ordinary Russian and Ukrainian people are friends of each other so there is no threat or danger for me. All that the media do on TV is mostly not true. So I haven't been watching TV
I also saw people who came to Maltsev for treatment from Poland, France, and Germany.
I hope I answered most of your questions. If you have additional questions, you can write to me at any time. I'm sorry for my bad English.
I am also sure that you will be able to find your way to health!