Stopping Valcyte

[heapsreal]

@heapsreal --I have problems with them all. This one messed with my temperature...body temp. I had awful insomnia and pain. Plus crying daily. A mess on it. How does one know if this would stop? I mean...to stay on something that may make you feel better later, but how to deal with the meantime. When something messes with my sleep...it's too hard to tolerate for me.

I hear ya. It was cfs times 10 and felt really depressed on it.
I sort of felt somewhat in control as I knew it was the valcyte and could stop it when I had enough.

I knew I had issues with cmv and really only treatment for it so I kept trying it. Im not saying you should do it but telling you what I did. I dont know why, but one trial at it I just didnt feel bad on it and could tolerate staying on it.

if hhv6 or cmv is an issue it might be possible to improve things with immune modes to a certain degree where one can tolerate valcyte.

Inflammation could also be an issue that might need to be looked at to help tolerate valcyte.

I would try and look for other issues?

 

[Misfit Toy]

Thanks, heaps! @heapsreal ....what a web!