Changing the name back to ME only counts if we can get the guidelines for diagnosis and treatment officially changed. I can envisage they "give us what we want" and call it ME, treat it as psychological, and prescribe CBT/GET. Part of the problem is that ME is widely regarded as psychological, despite the major flaws, and blatant irrationality, in that view. There is nothing stopping them from changing the reporting code to reflect ME but changing nothing else.
We need a new name, based on the pathophysiology, and tied to a diagnostic test. Or we need to force agencies like NICE to give ME separate guidelines. This will be resisted. In order to deal with PACE we need to point out that CBT/GET is proven, by their own data, to be a very expensive null treatment. We need to reiterate there are no objective benefits.
Petitions can raise awareness, which is good. However its more important to ensure that research uses appropriate diagnostic criteria than an actual name change.
I don't think we will get a new name until we have a diagnostic test, and then it will be based on the pathophysiology. SEID was an attempt to do that, but I think it fell short of the mark.
What will be of value though is if the numbers signing a petition reach a high enough level to make politicians take notice. Who do we have who is ready to address parliament aside from the usual advocates? We should be thinking of a team.