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What chronic fatigue syndrome can teach us about 'long COVID'
https://www.livescience.com/long-covid-chronic-fatigue-syndrome.html
For any of us still clinging wistfully to the hope that the prevalence of long-haul COVID patients will yield anything of value to our community, here’s the last three paragraphs of the above article from Live Science:
So the prevailing idea of a "cure" is a form or GET and/or “Learn to live with it” …. something most of us have been doing for a long time with varying levels of success and an on-going sense of abandonment and pissed-offed-ness ….
https://www.livescience.com/long-covid-chronic-fatigue-syndrome.html
For any of us still clinging wistfully to the hope that the prevalence of long-haul COVID patients will yield anything of value to our community, here’s the last three paragraphs of the above article from Live Science:
"Most medical schools do not teach students about ME/CFS. "The illness is often misunderstood and might not be taken seriously by some healthcare providers," the CDC states. Many physicians dismiss the symptoms of patients with ME/CFS if they can't find an obvious biological cause that explains them, Jason said. People who have long COVID are facing the same sorts of problems. "I can't tell you how many people have called me with long COVID and have said, if doctors can't identify some specific organic damage to them, people are dismissing their symptoms," he said. The emergence of long COVID could prompt physicians to take ME/CSF more seriously.
"Although there is no cure for ME/CFS, it's possible to treat — or at least attempt to lessen — some of the condition's individual symptoms, according to the CDC. For example, a person who has trouble sleeping could try over-the-counter sleep medications, talk with a doctor about prescription sleep medications, or see a sleep specialist, the CDC states, while admitting that with regard to sleep problems, "for people with ME/CFS, not all symptoms may go away." Still, the strategy of treating individual symptoms could also help people with long COVID, Jason said. "When you have people who are ill like this, they need a multidisciplinary approach to rehabilitation," he said. That can mean seeing a nutritionist, a pain specialist, a sleep specialist, or whatever health professionals treat the symptoms a patient is having, he said.
“It's essential that health professionals treating ME/CFS and long COVID patients understand that what might help most people gain more energy, such as working out 30 minutes several times a week, could actually hurt these patients, Jason said. Instead, "physical and occupational therapists can help these patients with learning how to pace, learning how to structure your life in a way that doesn't make you sick," Jason said.”
"Although there is no cure for ME/CFS, it's possible to treat — or at least attempt to lessen — some of the condition's individual symptoms, according to the CDC. For example, a person who has trouble sleeping could try over-the-counter sleep medications, talk with a doctor about prescription sleep medications, or see a sleep specialist, the CDC states, while admitting that with regard to sleep problems, "for people with ME/CFS, not all symptoms may go away." Still, the strategy of treating individual symptoms could also help people with long COVID, Jason said. "When you have people who are ill like this, they need a multidisciplinary approach to rehabilitation," he said. That can mean seeing a nutritionist, a pain specialist, a sleep specialist, or whatever health professionals treat the symptoms a patient is having, he said.
“It's essential that health professionals treating ME/CFS and long COVID patients understand that what might help most people gain more energy, such as working out 30 minutes several times a week, could actually hurt these patients, Jason said. Instead, "physical and occupational therapists can help these patients with learning how to pace, learning how to structure your life in a way that doesn't make you sick," Jason said.”
So the prevailing idea of a "cure" is a form or GET and/or “Learn to live with it” …. something most of us have been doing for a long time with varying levels of success and an on-going sense of abandonment and pissed-offed-ness ….
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