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Hi everyone. I am new here. My question may be related to dysautonomia. For past 2 months, I have been having spasms in the middle of my lower chest, where my diaphragm is located, over and over as I am on the edge of sleep. It does not happen in the daytime.
My sleep clinic has adjusted my BiPap because of increased central sleep apnea (where your brain forgets to tell you to breathe), and they've put in an order for a new machine that will apparently breathe for me when the central sleep apnea occurs. My apnea episodes are way down with just their tweaking of my BiPap settings, but the spasms continue.
An echocardiogram showed no issues with the structure of my heart. About to do a 24-hour holter heart monitor to check electrical activity. I suspect a neurological issue due to chronic inflammation, perhaps irritation of the phrenic nerve that controls my diaphragm. It seems to be a "myoclonus": jerks, shakes, or spasms that are sudden, brief, involuntary, shock-like, and variable in intensity. The spasms or shock sensation lasts only about 1 second. Often I wake in a panic that I am dying and try to call out for help but the words won't come and all I can do is yell.
Husband just put a baby monitor in the bedroom so he can listen for me while he stays up late. My integrative doc has me on salt tabs and increased water for mild OI, but maybe I need more potassium. My ME/CFS seems to have started with CIRS (Chronic Inflammatory Response Syndrome) from water damage in our home, and I was treated for Lyme twice years ago. Has anyone experienced similar spasms? Thank you.
My sleep clinic has adjusted my BiPap because of increased central sleep apnea (where your brain forgets to tell you to breathe), and they've put in an order for a new machine that will apparently breathe for me when the central sleep apnea occurs. My apnea episodes are way down with just their tweaking of my BiPap settings, but the spasms continue.
An echocardiogram showed no issues with the structure of my heart. About to do a 24-hour holter heart monitor to check electrical activity. I suspect a neurological issue due to chronic inflammation, perhaps irritation of the phrenic nerve that controls my diaphragm. It seems to be a "myoclonus": jerks, shakes, or spasms that are sudden, brief, involuntary, shock-like, and variable in intensity. The spasms or shock sensation lasts only about 1 second. Often I wake in a panic that I am dying and try to call out for help but the words won't come and all I can do is yell.
Husband just put a baby monitor in the bedroom so he can listen for me while he stays up late. My integrative doc has me on salt tabs and increased water for mild OI, but maybe I need more potassium. My ME/CFS seems to have started with CIRS (Chronic Inflammatory Response Syndrome) from water damage in our home, and I was treated for Lyme twice years ago. Has anyone experienced similar spasms? Thank you.
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