judyinthesky
Senior Member
- Messages
- 361
Hey
Maybe some of you read that I have been doing super poorly after Covid vaccine and a spinal tap which lead to cerebrospinal fluid leak.
My symptoms seem to add up nicely in my brain.
My issue is that I am getting more and more severe. Wearing noise cancelling all the time can't stand anyone in my room anymore. Can't talk anymore.
I crash constantly with waves of sensitivity going through my nervous system just by thinking also. And after everything.
The issue is I can hardly get better, as I tend to have the problem. I go to sleep and get sleepy, but then, in particular when I get more tired, my brain gets inflamed (I feel also some cranial nerve symptoms, like a tingling on tongue - which could be extreme anxiety, but it also started with the leak). It almost seems like a reflex: happening when I am going relaxed, sometimes.
I feel this night effect is rather mechanical.
Every time my skin burns as well, I tend to have trouble breathing, extreme agitation, extreme sound sensitivity, and every time that I have had such an episode my ME gets worse. I feel like a downward spiral.
I also have extreme pictures behind my eyes, almost psychotic. Weird mix of everything in my life.
I think what would be helpful is anything that could help this brain inflammation at issue.
Please note that my parents care for me.
I wish I had gone and gotten a blood patch before I went hypersevere.
My theory is that both an ME brain inflammation and the leak work somehow on the same area. They somehow add up - stress from the nerves being pulled and maybe the ones inflamed.
Before the spinal tap, I had a little bit of heat at night but not much. The heat at night now is almost unbearable, as is the skin burning, and gets better throughout the day.
I am medication hypersensitive but respond a little to Xanax.
Let me know your thoughts.
Maybe some of you read that I have been doing super poorly after Covid vaccine and a spinal tap which lead to cerebrospinal fluid leak.
My symptoms seem to add up nicely in my brain.
My issue is that I am getting more and more severe. Wearing noise cancelling all the time can't stand anyone in my room anymore. Can't talk anymore.
I crash constantly with waves of sensitivity going through my nervous system just by thinking also. And after everything.
The issue is I can hardly get better, as I tend to have the problem. I go to sleep and get sleepy, but then, in particular when I get more tired, my brain gets inflamed (I feel also some cranial nerve symptoms, like a tingling on tongue - which could be extreme anxiety, but it also started with the leak). It almost seems like a reflex: happening when I am going relaxed, sometimes.
I feel this night effect is rather mechanical.
Every time my skin burns as well, I tend to have trouble breathing, extreme agitation, extreme sound sensitivity, and every time that I have had such an episode my ME gets worse. I feel like a downward spiral.
I also have extreme pictures behind my eyes, almost psychotic. Weird mix of everything in my life.
I think what would be helpful is anything that could help this brain inflammation at issue.
Please note that my parents care for me.
I wish I had gone and gotten a blood patch before I went hypersevere.
My theory is that both an ME brain inflammation and the leak work somehow on the same area. They somehow add up - stress from the nerves being pulled and maybe the ones inflamed.
Before the spinal tap, I had a little bit of heat at night but not much. The heat at night now is almost unbearable, as is the skin burning, and gets better throughout the day.
I am medication hypersensitive but respond a little to Xanax.
Let me know your thoughts.
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