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sorry i want to die, 33 years old and early menopause.....

Messages
23
Hello everyone,
I am 33 and i suffer from ME since i was 24. This illness has impact in my life so hart i am not able to work since i was 28 and even getting social help in the country where i live (Germany) i live in isolation and financial misery. No familiy, no friends, and no boyfriend.
I developed wiith the years severe dysautonomia, pots, hashimoto thyroiditis, heart insufficiency, endometriose and my hormone levels are very low, no testosterone (what means this? ) .
But the worse thing i am experiencing now is , since 3 years i have a violent, PMS (premenstrual syndrome) and i bleed too much or nothing. I got to the doctor all this years, telling him, the week before my period, i cant sleep from NIGHT SWEATS and nobody got to the idea, i was maybe premenopausical?
its this possible, if i have this terrible night sweats, and mood changes, depression and hairloss, that i am going into the menopause ?
thanks :(
 

Hajnalka

Senior Member
Messages
910
Location
Germany
Hi @Berzerkerina, welcome to Phoenix Rising! :hug:

I like your profile pic, it looks how I feel too. Sorry, can't contribute anything meaningful regarding your question but I'm sure others can. You could also check out the search function, I think I've read here about early menopause before.
 
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Messages
23
yeah i have epstein barr and herpes viruses, also lyme
the complete kit , but i thougt this is normal with cfs? thanks for your attention, hugsss
 

Countrygirl

Senior Member
Messages
5,429
Location
UK
@Bzererkerkerina

I am sorry to hear that you are having such a wretched time. Most of us here can relate as many/most of us have been or are still in a similar position.

The night sweats are a typical symptom of ME. For years, (sorry if this is too much information :redface: ) I drenched the sheets every night with cold sweats. I live alone, had no strength to change wet sheets, so would throw a pillow on the floor and lie on the carpet in front of an electric fire while an electric blanket dried the bed. After an hour or so, I would clamber back in only to soak the bed again with drenching cold sweats. My nocturnal experiences with this wretched disease finally drove me to the point of not using a bed anymore as I cannot deal with the laundry and have no one to help. So, for the past ten years have given up using a bed at all.

Perhaps your sweats then maybe a result of the illness, and not the menopause???
 
Messages
15
Hi, @Berzerkerina, I am sorry you have such a diffcult time :(

I have read about patients in german ME/CFS-online-groups (cfs-treffpunkt.de , https://www.facebook.com/groups/292707130807803/ ) who have endometriosis. In these groups is often posted too much quackery and pseudoscience (for my taste), but they can be helpful to find online-friends in your country with similiar problems, to find a good gynecologist and so on.
 
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Paralee

Senior Member
Messages
571
Location
USA
@Berzerkerina , if you have zilch hormones I wonder if getting them fixed would help? That's what I'm fixing to try, anyway. Even at 33 if you have low hormones, that could just be symptoms, but if you could fix those it might give a clue. I have a cardio worried about my heart, but I've read that the print outs can show where adrenals and things are low looking at bumps in a wave? Not sure about that, but I'm going to look into it.
Good luck.
 

frederic83

Senior Member
Messages
296
Location
France
yeah i have epstein barr and herpes viruses, also lyme
the complete kit , but i thougt this is normal with cfs? thanks for your attention, hugsss

Which other herpes virus ?
I have seen profiles like yours many time with EBV.
I would not bother with Lyme except if you feel better with antibiotics. If you don't, consider only treating EBV.
EBV is one of the virus that often triggers CFS.

My best advice is firstly to treat the symptoms, it is easily said but is quite hard to achieve sometime or just not possible. POTS, sleep, thyroid, hormones...
I would consider LDN because you have autoimmunity and EBV, if you have not tried it yet. It is not a cure all but can eases off some symptoms. Start low.

Sometime, people feel better with a clean diet because it lowers inflammation.

Regarding antivirals, it is quite tricky. Valtrex helps some people with EBV. Again, it is not (or rarely) a cure for CFS.

Hope this helps.
 
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Binkie4

Senior Member
Messages
644
Do you have correct treatment for your hormone issue? I had really bad pms in my early 30s. Felt dreadful depression ( even suicidal) and other symptoms in the week leading up to my period: no help from gp who thought I was depressed.
Eventually referred to a Dr Katherina Dalton in Harley Street who specialised in treating pms.
She treated me with cyclogest, a natural progesterone. I felt so different. Colours became brighter and I was alive again.

This was 40 years ago so she is no longer here, but could you check that your hormonal issues are being dealt with properly.

I wish you well @ Berzerkerina.
 

Mary

Moderator Resource
Messages
17,335
Location
Southern California
@Berzerkerina - your hair loss and crazy periods and night sweats could all be connected to your hashimoto's. You need a good doctor who will properly treat your hashimoto's and help with your low hormone levels. And women do need some testosterone, that should be addressed too. So I think there's a good possibility you're not dealing with early menopause but you definitely need help with your thyroid and hormones, etc.

I'm sorry you're having to deal with all this from a young age, and hope you get some help soon!
 

Wonkmonk

Senior Member
Messages
1,006
Location
Germany
yeah i have epstein barr and herpes viruses, also lyme
the complete kit , but i thougt this is normal with cfs?

Are you familiar with the work of Dr Martin Lerner and Dr Jose Montoya? In some CFS patients, persistent herpes virus infection seems to play a role for their CFS and substantive improvement can be made in these patients with anti-viral therapy. This isn't based on quackery, but on serious scientific research, part of it published in leading academic journals.

Here is Dr Lerner's homepage where he explains his research and treatment approach. Dr Montoya's is similar. (sadly, he is deceased in 2015)

http://www.treatmentcenterforcfs.com/

As someone else mentioned, it rarely cures CFS, but it helped many patients at least to get better.

Also please note the Norwegian trials with Rituximab for treatment of CFS. Their research will be published early next year, and results obtained so far seem to be very promising. They found ~33% completely in remission, 33% improved to some degree, and 33% unchanced, a few worse, after treatment with Rituximab. So that's a two-thirds chance of at least getting better.

Also note that Rituximab is used off-label for Hashimoto and has helped some patients with complicated or severe disease. Plus there is so much research and progress going on with monoclonal antibodies and in other areas of medicine. In the next years, there will be treatment options we can't even imagine today.

So, I think for CFS patients, now is the worst time ever to give up :)

If you are interested, I can give you more information and links to studies about these topics. I am doing antiviral therapy since January with significant success.
 

kangaSue

Senior Member
Messages
1,851
Location
Brisbane, Australia
@Berzerkerina Autonomic Neuropathy (AN) often accompanies severe dysautonomia, sudomotor dysfunction is common with AN and the dysregulated sweating that you get with sudomotor dysfunction can be hard to tell apart from the sweat dysregulation issues that you get with menopause.

Autonomic function sweat tests of QSART and TST diagnose sudomotor dysfunction.