SWAlexander
Senior Member
- Messages
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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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No research money. Not one public instutition in the world has put up consistent cash to actually research the causes of the disease and chase down the theories or to run trials on any drugs.Nice to see a piece of historical information. Shame it's 2023 and the same things are suspected. Why did this research not progress?
Because we have no "Mr. Smith Goes to Washington"Why did this research not progress?
Millions were spent for ME research and 1.5 billion for Long Covid without results.
Good and not-so-good scientific publications have been accumulating in every ME/CFS computer since the beginning of the illness. Years went by and we are still without any chance of medical help or cure.
How much longer will we be ignored?
These people are the reason millions have suffered
I often think that as a species we're not that bright. We spend huge amounts of money on wars and supporting the collection of huge amounts of money for a small minority of people.
When in reality we all want to live long healthy lives. The profits should be spent on medical advancements as even extremely wealthy people are still going to get sick and die. That money's not much use then.
'Yuppie flu' I remember that label. Trivialised from the start. 🤬