*GG*
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I sent in my paperwork yesterday, anyone know how long it takes to get the paperwork etc?
I have 2 Dr appt early next week!
I have 2 Dr appt early next week!
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I sent in my paperwork yesterday, anyone know how long it takes to get the paperwork etc?
I have 2 Dr appt early next week!
Is this the place people should go to fill out the questionnaire and start the process of getting enrolled in the BioBank?
http://solvecfs.org/SOLVECFSBIOBANK/ELIGIBILITYQUESTIONNAIRE/tabid/113/Default.aspx
I've had the same problem with the polls, by the way, if you don't click a box the participants names show up.....
I would like to, but I just don't have the energy to wade through the web pages and decipher the exclusion conditions and how they apply to me. I do wish the web pages were set up for brain-fogged folks
I think you may have to restart it. But I'm not an expert. That's what you have to do on yahoogroups.
If you restart it, you might want to be more specific in the wording or start a new thread.
The thread title is:
but the vote asks:
They are not necessarily the same question.
Personally, I think the CAA should be congratulated for doing this. Also, one could like them doing this but still disagree with them on other issues. One could even not like them about virtually everything and still participate!
Many people in the US may not know but many, if not most, national ME/CFS groups around the world aren't financially supporting biomedical research. Some have quite big budgets e.g. AfME is in and around 1m (in the region of US$1.5m) (ok, it's giving a tiny bit from a fundraiser a supporter organised in 2006 but generally hasn't been financially supporting research over the last 10 years). Many/most regional and smaller groups in the US and elsewhere don't raise money for research - either for themselves or for other funds. Personally, I'm pleased that the CAA is really getting behind financially supporting research. We need more groups around the world to do likewise, IMO.
I'm in the biobank, but they're not using me!