From The Association's web page:
"Since we announced the SolveCFS BioBank on Monday, there has been tremendous enthusiasm about the opportunity to participate in this type of ground-breaking research . However, until all the required institutional approvals are obtained by all parties required to initiate BioBank-based studies, the CFIDS Association of America is not able to share information or comment on reports initiated by others about studies being planned. In the interim, please refer to our March 29, 2010 announcement about the SolveCFS BioBank and updated eligibility criteria. We hope that you agree that adhering to protocols established for confidentiality, privacy and the ethical conduct of research serve the interests of all of us dedicated to advancing understanding of CFS.
We regret any confusion that may have been generated and we look forward to regularly sharing news about the SolveCFS BioBank and approved studies."
In addition, researchers who use samples from the BioBank will be required to submit their findings to peer-reviewed publications.