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Solve ME/CFS Initiative webinar with Dr Unger

Bob

Senior Member
Messages
16,455
Location
England (south coast)
I had considered creating a transcript of this one but considering the poor reception that those who listened to it in real time gave it I'm not sure it's worth it. If there is enough interest though then I'll do it.
Have I missed a thread on this when it was live?
 

Bob

Senior Member
Messages
16,455
Location
England (south coast)
Just listened to this. Nothing much of interest. Nothing new.
Some basic publications in the pipeline but nothing soon.

The study's methodology will be published first and has been submitted but it will be a few months before publication.

A couple of promising snippets...

@ 47:00
Unger says CBT is not a treatment; It does not change the illness.
May help some people get some control over their illness.

@ 49:00
Unger says fatigue might not be best measure of illness; she says what changes is function, not fatigue.
She says when patients improve they will work up to their previous level of fatigue.
(i.e. she means that patients can manage their fatigue levels by controlling their levels of activity.)
So function is a better measure of illness.

Nothing spectacular but I think the above snippets indicate that there is at least some understanding of the illness.
 

mango

Senior Member
Messages
905
Ugh, I'm still working on the transcript of this, for those who still might have some interest. Fingers crossed I might have it done tomorrow, if I don't it'll be another week or so as we are going away. Sorry if there is anybody waiting on it.

No worries! Take your time :) I don't mind waiting, it's honestly no problem at all :)
 

Kharren

Hopeful opptomist
Messages
19
Location
Hermosa Beach Calfornia
Just listened to this. Nothing much of interest. Nothing new.
Some basic publications in the pipeline but nothing soon.

The study's methodology will be published first and has been submitted but it will be a few months before publication.

A couple of promising snippets...

@ 47:00
Unger says CBT is not a treatment; It does not change the illness.
May help some people get some control over their illness.

@ 49:00
Unger says fatigue might not be best measure of illness; she says what changes is function, not fatigue.
She says when patients improve they will work up to their previous level of fatigue.
(i.e. she means that patients can manage their fatigue levels by controlling their levels of activity.)
So function is a better measure of illness.

Nothing spectacular but I think the above snippets indicate that there is at least some understanding of the illness.
Interesting....I do like the idea of function vs. fatigue but my functional ability is directly tied to my "fatigue" level. It seems fatigue leads and functional ability follows.