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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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SMCI Monthly Thread - Feb 2018

Emily Taylor

Senior Member
Messages
149
Location
Los Angeles, CA
Hello from the Solve ME/CFS Initiative. We want to share our latest news and research with you, but we also want to respect your space and not spam the forums. In order to do that, we are starting a monthly thread where will we add all of the latest news from SMCI. Throughout the month we plan to use this thread to post our latest news and research.

We'd like to start by sharing last month's edition of our newsletter Research 1st.
 

Emily Taylor

Senior Member
Messages
149
Location
Los Angeles, CA

Emily Taylor

Senior Member
Messages
149
Location
Los Angeles, CA
The Solve ME/CFS Initiative (SMCI) National ME/CFS Patient Registry, developed in partnership with the Genetic Alliance and Platform for Engaging Everyone Responsibly (PEER), is preparing for launch in the first half of 2018. As part of the roll-out, we will be publishing a series of articles in R1st with information about the features and benefits of the new platform. The series will start with a look at the Registry Community Guides.

READ MORE
 

Emily Taylor

Senior Member
Messages
149
Location
Los Angeles, CA
SMCI supports worthy ME/CFS research projects across a range of disciplines. In 2017, we funded five research projects and their work is currently underway.

The 2017 Ramsay study from Drs. Jonas Blomberg, Jonas Bergquist, Carl-Gerhard Gottfries, and Olof Zachrisson of Uppsala University and the Gottfries Clinic in Sweden is entitled “Biomarkers for initiation (infection) and metabolic derangement in ME/CFS.” READ MORE