I've been using the ME/CFS Diary for a few weeks. I'm finding it frustrating, because it's a brilliant idea, but it's very poorly executed, not to mention overpriced. It doesn't actually offer any advice, as it claims. Instead, when you start it, it asks you what you think your baseline is, and then after a while it might tell you that your baseline is a different number. However, logging my activity for every half-hour does make me very aware of how I'm balancing my days, and that in itself is going to be an important help, I think. Be warned that even on a 7" tablet, the text is tiny and most of the graphs are unreadable, plus it has the irritating feature of only working in landscape mode, and the sliders don't work properly. As well as general readability issues, I'd love to see a version of this where it came up for a score for each day, also translated that into a colour, and put both on a calendar that you could easily flip through to look at your progress.
I downloaded FibroMapp last night, and annoyingly missed the deadline for a refund. I'm sure it's a good app, it's just not what I'm looking for. I already have a complex spreadsheet set up on the laptop for tracking symptoms, meds and such.
I use Dosecast for tracking when I take as-needed meds and to remind me to take more. It's not bad, although it can get tricky when it comes to meds I can't take after a certain time in the evening, and it keeps on doing reminders for them despite my settings.
Water My Body is good for monitoring and reminding you to drink enough water (with salt in it, if you're me). You can set it up so that the different glasses and mugs match the volume capacity of the ones you own. I have to confess that one's fallen by the wayside. I should get back to it, considering that the cardiologist wants me drinking 3l a day and I'm not sure I'm making that.
One I've just started using is Shift.Cal. This is an app for marking work shifts, but I've adapted it so that I can sum up each day in terms of energy expenditure, and colour-code them as well. It currently runs from 1 (bedbound, purple) through blue, green (3, restful day), yellow up to red (7, very high energy), though 7 is for rare occasions. It shows the number and the colour on the calendar. I think it's going to be a very useful way to look back, month-at-a-time view, to see how well I've been. Plus if I have, say, five 6s in a row followed by a long row of 1s and 2s, I know that I've pushed myself into a crash, but if I have a mix of 4s, 5s and 6s, and can keep it going steadily, I know that it's currently a sustainable level for me. (I'm doing much better than when I was last on PR, by the way.) So as I was saying, I'd love it if the ME/CFS diary could include this sort of functionality as well.
Right now I'm hunting for an app where I could track pain levels and compare them to medication levels, specifically magnesium oil. I've only just started using magnesium oil and I want to work out whether it's working for me, and which dose I need.
I really wish I knew how to write apps, as I could probably put something pretty good together, judging from my years of creating my own spreadsheet with its graphs and charts. But I have no coding experience at all! Ironically, my partner has just started working for an Android app developing company, not that he's at the stage of writing apps yet.
