vision blue
Senior Member
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I guess not everyone with cfs gets small vessel disease but know have seen mention of it here before. Just read in. notes a doc said i have palmar erythema and its certainly true my handsand feet get bright red easily and often and are getting wose. The doc did not bother to even mention it. Same doc that didnt mention the periventricular changes on brain mri and same doc that seems to not believe me because my symptoms dont fit the patterns hes familiar with
I Remember when I had discussed the redness with a rheumatologist a few years ago the only thing he was interested in is whether or not I had Reynard s and when he found out that the color change was not from cold but more likely from hot he lost interest, didnt really believe me, and I just got the blank stare
As usual
Im tired of watching myself fall apart
And as usual “me too” or other comments welcome.
I Remember when I had discussed the redness with a rheumatologist a few years ago the only thing he was interested in is whether or not I had Reynard s and when he found out that the color change was not from cold but more likely from hot he lost interest, didnt really believe me, and I just got the blank stare
As usual
Im tired of watching myself fall apart
And as usual “me too” or other comments welcome.