ok, I found something new to try. non-pharmacutical. it's microcurrent (a little like TENS but much less of a current). It can be used to treat sleep and other difficulties as well.
my Navy friend says some military commanders have used it and are impressed; they've commissioned a study to investigate the use of microcurrent to treat veterans. she uses it, too, on herself and her family and they have good results. my sister's ND used it with her for fibro and it helped.
Dr. D should be able to help you get a machine, or you can look for practitioners
here (international search). Some of them can program a machine with specific protocols for you. My friend says it's cheaper to purchase a machine from an ND [you'd need a prescription, at least here in the USA] than to keep returning for treatments. I've used it and have not run into any troubles. I haven't used it enough to really say whether it's effective for me, but I think at least the sleep setting helps.
Dr. Carol McMakin has published a number of
studies. She's studied fibro and not ME, but some of the cytokines are the same. She's also studied the use of microcurrent in neuropathic pain, shingles, and delayed onset muscle soreness.
best,
willowj