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@Solstice, LOL, we could use your mom's help!!
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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thread about this story here: http://forums.phoenixrising.me/inde...k-and-chalder-sharpe-white.50155/#post-827452Today the PACE authors found it relevant to react to a small Dutch University magazine to defend their PACE results...
Please signe everyone! So close to 7000... one week left to sign!we need 25 more signatures to reach 7000
https://meisgeensolk.petities.nl/?locale=en
Petition ME isn’t MUPS being presented in The Hague on 18 September next. So… very last chance to sign or let others sign! Share… just ± 600 signatures needed to complete 10.000! http://bit.ly/2e2Nsq7
Today the PACE authors found it relevant to react to a small Dutch University magazine to defend their PACE results... this is getting more crazy by the minute. They reacted to an article / interview last week with Prof. Cohen Tervaert, immunologist/internal medicine specialist, who is currently on the Dutch health Council Committee that is writing an advisory report on ME to Dutch Parliament.
A committee with half of its members BPS proponents, equating ME with MUS, etc.
Guess Chalder, White and Sharpe where not happy with Prof. Cohen Tervaert's comments on PACE last week. this is their response:
http://www.observantonline.nl/Home/...w/articleId/12101/Myth-busting-a-myth-busting
Mind you, this was a Dutch University magazine/in Dutch!!!
How on earth did they feel it was necessary to react to that and perpetuate their false claims about recovery...
Oh wait....their Dutch Pace colleagues/BPS proponents (like Knoop, Rosmalen, Eurasmus buddies for years....https://web.archive.org/web/20160310191845/http://eurasmus.net/) are also on the Dutch Health Council committee writing adivsory report to Dutch Parliament.
if you want to help Dutch Patients, please take a minute sign and help
we need 25 more signatures to reach 7000
https://meisgeensolk.petities.nl/?locale=en
https://translate.google.com/translate?sl=nl&tl=en&js=y&prev=_t&hl=nl&ie=UTF-8&u=https://mecentraal.wordpress.com/2017/09/19/overhandiging-petitie-me-is-geen-solk-aan-de-gezondheidsraad-18-september-2017-ministerie-van-vws-den-haag-15-40-16-10-uur-een-voorlopig-verslag/&edit-text=&act=urlHANDING OVER PETITION ME IS NOT SOLK TO THE HEALTH COUNCIL AT THE MINISTRY OF VWS THE HAGUE, DATED 18 SEPTEMBER 2017, 15.40-16.10 - A PRELIMINARY REPORT
OVERHANDIGING PETITIE ME IS GEEN SOLK AAN DE GEZONDHEIDSRAAD OP HET MINISTERIE VAN VWS DEN HAAG, DD 18 SEPTEMBER 2017, 15.40-16.10 UUR – EEN VOORLOPIG VERSLAG
More than 10,400 signatures for the Dutch petition ‘ME is not MU(P)S’ (Medically Unexplained (Physical) Symptoms) was presented to Prof. van Gool, president of the Dutch Health Council three weeks ago on September 18th. The petition aims to hold the Dutch Health Council accountable for writing an advisory report to the Dutch Parliament on the state of the scientific knowledge with respect to ME (ICD G93.3). The Dutch Parliament had asked the committee to write the report. (See our earlier reporting about this petition last year).
Among the more than 10,400 signatures were many international ME experts like Dr. Weir, Dr. Booth, Dr. Zeineh, Dr. van Ness, Dr. van Elzakker, A. Whittemore, Dr. Dafoe, Prof. Racaniello, Prof. Coyne, Dr. Goudsmit, Dr. Wilshire etc. Also, “Invest in ME” officially signed the petition. They invited the Dutch Health Council “ME/CFS” committee to attend their biomedical conference this year. The committee had declined in 2016, this year they did not even bother to respond, not even after a reminder.