Firestormm
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Levi posted originally what I thought was an interesting poll over on MECFS Forums recently: http://www.mecfsforums.com/index.php/topic,13121.msg140387.html#new
It is probably not a clear-cut issue I suspect and you can read, should you wish, the replies thus far on the link above. I just thought it was something worth opening up to wider debate.
I do have his permission to repost here.
Levi's opening comment: 10 August 2012:
It is probably not a clear-cut issue I suspect and you can read, should you wish, the replies thus far on the link above. I just thought it was something worth opening up to wider debate.
I do have his permission to repost here.
Levi's opening comment: 10 August 2012:
I see a looming problem in future research efforts that are trying to establish a diagnostic capability for ME/CFS based on PEM (post exertional malaise). Existing versions of the term include BOTH physical and mental versions of the term when referring to exertion. The problem I see is that all of the research is going into the physical side of the equation, none into the mental fatigue aspect of patient experiences. Both are measurable scientifically, however I have seen no studies combining the two types of PEM.
PEM is usually introduced into a subject's medical history via subjective patient experience; in other words, the patient either answers a questionnaire or tells a medical provider about the problem. Fatigue lab testing or neuro-psychiatric testing for both physical and mental PEM respectively is expensive and esoteric. However, PEM is shaping up to be the "Hallmark Symptom" of ME/CFS by researchers, apparently with the full support of the patient community. It would behoove us to clear up any confusion about the term sooner than later. What is your opinion about use of the term PEM?