Hi,
I am a new member searching for some information. I just recently (last few days) heard of PoTS.
I was searching for answers to an array of symptoms which my almost 15yo daughter has been experiencing for almost a year now. When we went to the GP initially, she was diagnosed with Iron deficiency anaemia and had an iron infusion, which has brought her iron levels back to normal, so GP expected her symptoms to disappear within a month of the iron infusion.
However she is still experiencing the symptoms, which are dizziness, breathlessness, stomach ache, nausea, and often vomiting, during the night and morning, she says she always feels worse in the am and evening, usually soon after eating. She is so pale all the time, which we thought was linked to the anaemia.. GP believes it is anxiety, but my daughter is adamant it is not.
After reading about PoTS, I went out and purchased a wrist BP monitor and have started monitoring her pulse, it is regularly elevated, today I tried the poor mans tilt table test and was wondering if these results could be indicative of PoTS. I am also not sure if I am placing the cuff in the correct place, which could also screw up the results. she has been seen by the GP several times and also the Emergency room, but no one ever commented about an elevated H/R.
Laying (for 15 mintutes prior) (00) 95/57, H/R 101
Standing (1 minute) 119/71 H/R199
Standing (2 minute) 113/70 H/R199
Standing (4 minute) 105/65 H/R 98 *strange but she may have moved the cuff
Standing (8 minute) 101/70 H/R 153
Standing (10 minute) 105/67 H/R 147
Laying (3 minutes) 92/52 H/R 83
I have logged several 199 H/R in the past few days and several around the 140 and 150 mark. Usually it is 120 or slightly above. Her normal resting is between 68 and 75.
Thank you for any insight.
I am a new member searching for some information. I just recently (last few days) heard of PoTS.
I was searching for answers to an array of symptoms which my almost 15yo daughter has been experiencing for almost a year now. When we went to the GP initially, she was diagnosed with Iron deficiency anaemia and had an iron infusion, which has brought her iron levels back to normal, so GP expected her symptoms to disappear within a month of the iron infusion.
However she is still experiencing the symptoms, which are dizziness, breathlessness, stomach ache, nausea, and often vomiting, during the night and morning, she says she always feels worse in the am and evening, usually soon after eating. She is so pale all the time, which we thought was linked to the anaemia.. GP believes it is anxiety, but my daughter is adamant it is not.
After reading about PoTS, I went out and purchased a wrist BP monitor and have started monitoring her pulse, it is regularly elevated, today I tried the poor mans tilt table test and was wondering if these results could be indicative of PoTS. I am also not sure if I am placing the cuff in the correct place, which could also screw up the results. she has been seen by the GP several times and also the Emergency room, but no one ever commented about an elevated H/R.
Laying (for 15 mintutes prior) (00) 95/57, H/R 101
Standing (1 minute) 119/71 H/R199
Standing (2 minute) 113/70 H/R199
Standing (4 minute) 105/65 H/R 98 *strange but she may have moved the cuff
Standing (8 minute) 101/70 H/R 153
Standing (10 minute) 105/67 H/R 147
Laying (3 minutes) 92/52 H/R 83
I have logged several 199 H/R in the past few days and several around the 140 and 150 mark. Usually it is 120 or slightly above. Her normal resting is between 68 and 75.
Thank you for any insight.