I'd have to dig into this, but phosphorous is used in making AMP, ADP, and ATP, right? So when you added it to begin with and got energy was it that you were making more ATP. Then you crashed. Why didn't it recycle?
I don't know. That's what I was hoping the endo could tell me. I may have phosphate diabetes (see the link I posted above - and phosphate diabetes has nothing to do with diabetes mellitus). Again, I first became aware of this issue (low phosphorous) when I took thiamine and it seemed to be a refeeding syndrome response, just as I had one with potassium and methylfolate. And I still have to take extra potassium every day. So maybe a similar mechanism is at work here.
Thanks for The kefir suggestion, but milk products do me in
It's not the only source of phosphorous - it was a just a quick and easy way for me to find out that my severe fatigue was caused by low phosphorous. I eat very little dairy products, but occasionally have kefir and cheese. Now I primarily take a monosodium phosphate supplement, in small doses. But I'm sure you can find other sources of phosphorous - kefir was just the simplest for me to do.
BTW, low phosphorous also affects my mental functioning (no big surprise!) It affects my mood, my ability to deal with issues, it makes it hard to function basically. e.g., the last couple of days I have been dragging both physically and mentally, and things have been much harder for me to deal with and finally last night I realized my phosphorous may have tanked. I took some and this morning feel much better. I try to stay on top of this but it's not that easy.
I am going to go see a different endo in Los Angeles who is supposed to be very good (got his name from a member here) and there are several things I want him to check out, including anything he can about phosphorous. And after that, depending on what he says, I may go to see a nephrologist - if I have phosphate diabetes, it has something to do with the kidneys. It's very confusing, there is no clear road map here.
But again - you were wondering why your bones were dissolving - you could have an issue with phosphorous. I don't think doctors look at this or even think about it in connection with osteoporosis, but phosphorous is crucial for bone health. And it affects energy and brain function, everything. And even though nothing has shown up on blood work or I'm sure your doctors would have found it by now, it doesn't mean everything's okay. My phosphorous in general looks fine on blood work, just like my potassium does. But they're not fine.
