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Hello, im 28 years old from Sweden. I have been sick for perhaps all my life or since i was very young.
When i became around 14 years old my symptoms became fully developed and has been since then.
I have had an medical investigation going on for exactly 8 years, pretty much all my tests has been normal.
The only thing i have had low levels of all these years is cortisol, but i have had an endocrinology investigation and hydro-cortisone doesn't make any difference so it doesn't seem to be related.
The most remarkable thing about my situation is that im 100% sure that i have a disease that is treatable.
I was cured 10 years ago when i took Accutane against accne, this lasted for around 6 months.
And this is also the only thing that is keeping my hope alive..
I have no idea what kind of disease i have, it feels very hopeless..
I heard about Mayo Clinic recently and it seems many people travel to that place that is in a similar situation.
Do you think i should go there? I would need to travel half the globe and spend alot of money but if they are as good as they say they should find whatever is causing my problems.
I just cant wait for much longer, so many years of my life has just been thrown away already..
When i became around 14 years old my symptoms became fully developed and has been since then.
I have had an medical investigation going on for exactly 8 years, pretty much all my tests has been normal.
The only thing i have had low levels of all these years is cortisol, but i have had an endocrinology investigation and hydro-cortisone doesn't make any difference so it doesn't seem to be related.
The most remarkable thing about my situation is that im 100% sure that i have a disease that is treatable.
I was cured 10 years ago when i took Accutane against accne, this lasted for around 6 months.
And this is also the only thing that is keeping my hope alive..
I have no idea what kind of disease i have, it feels very hopeless..
I heard about Mayo Clinic recently and it seems many people travel to that place that is in a similar situation.
Do you think i should go there? I would need to travel half the globe and spend alot of money but if they are as good as they say they should find whatever is causing my problems.
I just cant wait for much longer, so many years of my life has just been thrown away already..