@percyval577 Low manganese is worth a try untill I get a diagnosis. It's interesting you mention this because all the foods I've been taking are heavy in manganese including garlic, ginger, nut muesli, kidney beans, chickpeas, spinnach, wholegrain foods and green tea. I don't eat meat which probably doesn't help either. This might explain why my symptoms are steadily worsening.
Yes, this might be an easy explanation, and a mainpart (I think).
After a long ebv infection I got more and more symptoms, obviously because I often ate beans and other pulse, I also drank a lot of tea.
Then, by accident, I stopped eating beans, And very slowly I improved. Then, again by accident, I replaced tea by coffee and improved, and I was almost normal after two years. And then I changed my diet again, and stopped eating meat, therefore ate beans again, and I relapsed after three month heavily. Five awful years followed.
When I started low manganese food I felt the first time very good, "only" when making mistakes I felt bad ... but dangerous bad, i don´t know how to put in a few words.
Then a long period with only very slow improvement took place, but after two and a half years my pain had mainly gone, what a pretty succes. But thinking was a bit worse, and I could not work anymore. I also got sudden pm, which didn´t appear in that sense before.
Only recently I discovered the other influences, and I guess the sugar (and fat) issue makes the improvment more comfortable and maybe slightly more accelerated! The positive things (here I didn´t mention chromium above) can be thought of to work in the basalganglia and thalamus, the rulers of the brain.
Here I think i´ts their connections that have been/are destroyed by the effect of manganese. It is also thinkable that there establish bad nerve circuits which make the feeling and coordination sad and poor.
PS: I want to point out that for a long period the improvement (with manganese alone) was only to be evaluated in a time frame of three months! And then after two and a half year the pain could be said of to have mainly gone. What a difficult assesment.
PPS: The tick born disease would be a direct impact from their manganese when the divide. The manganese would leach into the blood or tissue and it´s well known that manganese at high levels is poisening. And inside the joints of patients with heavy symptoms there have been found only ridiculous few borrelia.
