(...) any of the long term sufferers have severe osteoporosis problem. (...)
Hello Cindy!
I have 57 years. I have ME/CFS by 27 years.
In 2009 I made bone densitometry, they found "surprisingly severe osteoporosis, not compatible with age".
I redid the bone densitometry exam last year, and the situation has worsened.
The medical report strongly suggests to "investigate all the possibilities for secondary osteoporosis". Investigation performed only in part.
(In my medical landscape, nobody knows the ME / CFS. Most have heard about CFS, and believe it is a unidentified mental illness.
The most documented, are convinced that improves with exercise, because this say the studies . One of my doctors decided that ME does not exist, because its reference sites given hundreds studies on CFS and very few of ME, therefore he concluded that: CFS exists, and ME is not relevant, because it does not concern studies ...)
With administration of vitamin D have digestive problems.
They tried with an injection of bisfonoati (the dose to be taken every 3 months): 5 days of hospitalization and wheelchair, because I could not move due to pain, in addition strong nausea. Obviously the experiment was not repeated.
Now give me Prolia ... I have only 1 puncture, to be repeated every 6 months. Read nausea during 2 months ...
I do not know the benefits. I noticed a slight improvement of certain pains.
...
Affaire à suivre ...
However, even I'm interested to know how many of the long term sufferers have severe osteoporosis problem.
In many websites on ME / CFS, I found osteoporosis among the complications of the disease.
But: in the majority of sites, it seems that the author has done copy / paste from another source.
I would be happy if anyone knows serious studies on the relationship between ME / CFS and osteoporosis. Thanks to those who have some links on the argument to recommend.
Thanks