Severe ME: I had to fight the people supposed to help me

[IThinkImTurningJapanese]

Severe ME: I had to fight the people supposed to help me

Sam (*not her real name) is a teenager living in Australia’s largest city without access to treatment to help her. Sam was prescribed graded exercise therapy (GET) and cognitive behavioural therapy (CBT) repeatedly. After doing GET, Sam became housebound. Sam now has very severe ME and says even having a person enter the same room is “unbearable”. Despite having classic ME, she was taken to a psychiatric ward where she was threatened and kept from seeing her family. Here is her story......

Speaking out
I want people to know that this happened in Australia, in the middle of one of the most developed cities in the world in 2018. It is still happening. And although it is undoubtedly painful to remember, the actions of others do not define us, nor do their brutality, and it is important not to protect it by not speaking about it, discussing it and delivering the message that people are being treated horrifically.

 

[Mel9]

Severe ME: I had to fight the people supposed to help me

This is really awful.

I didn’t know it was happening in Sydney.
Anything I can do to help?

 

[IThinkImTurningJapanese]

Anything I can do to help?

Well this is in a public thread, maybe she will find this and can answer that question for you. I do hope she is finding some support. Hell looking at that last paragraph, I think she's more suited to offer me encouragement than the other way around.

 

[Hope4]

A very brave person, indeed. God bless her with health and strength, with new wisdom and insight, and every blessing.