Artemisia
Senior Member
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Thanks for all the info!You may have PCOS.. PCOS people also have issues with weight gain. If you have not had it done already, get yourself the tests you need to rule that out eg an ultrasound of my ovaries were done to find the typical "string of pearls" effect found in PCOS.. My PCOS got missed for a very long time and its important to know as it gives you high risk of other things.. eg diabetes or insulin resistance among other things.
PCOS may be missed in ME/CFS as the ME/CFS can change the hormonal issue often found in PCOS of the higher testosterone they look for to aid in diagnoses as ME/CFS often causes issues with low testosterone.. so my previously high testosterone with the PCOS is now low testosterone due to the ME. So dont allow them to not give you a PCOS diagnoses based on not finding high testosterone if the PCOS "string of pearls" is found on scan.
80% of those with PCOS will be diabetic or have pre-diabetes by the time they are 40. If it turns out you do have PCOS, you then should see someone knowledgable in this and have a 2hr glucose tollerance test done to find out if you have hyperinsulinemia or not. That issue can cause a lot of symptoms but most doctors are unaware of this. I find my hyperinsulinemia makes me more tired and can actually give me a sore throat (immune flare up) if I eat wrongly in regards to it.
I have had an MRI and ultrasound of my pelvis. The GYN says I don't have PCOS.
But she did diagnose me with paraovarian cysts. They're big. One's 8 cm and one's 5 cm. She says they're simple and benign. Because they are outside the ovary, they're not contributing to my symptoms of pre-diabetes, high insulin, weight gain, etc (or so she says).
But she says I can choose to remove them via laparoscopic surgery if I want. According to her, the only advantage to surgery would be making sure they're gone / peace of mind / avoiding follow up ultrasounds every 3-6-12 months to make sure they're not growing or becoming problematic.
I honestly don't know what to do. I've gone back and forth on surgery. I don't want adhesions or other complications post-surgery. I also have A LOT of abdominal / pelvic fat which can make surgery more difficult. I wouldn't want her to make a wrong incision because it's hard to see and move around at the surgical site.
It's been a few years since I did the glucose tolerance test; I'll ask for a new one. But what can they do for hyperinsulinemia? Just Metformin or birth control pill right? I don't want the BCP and Metformin makes me super weak and fatigued, so I don't know what else I can do but continue eating healthy which doesn't seem to make any impact.