Severe altered consciousness

[wastwater]

I used to joke my syndrome could be called chronically f***ed syndrome or six pint syndrome now I just say I feel like im addled by something

 

[Aerose91]

I used to joke my syndrome could be called chronically f***ed syndrome or six pint syndrome now I just say I feel like im addled by something

Lol, I like it. The best way I describe it to someone is I feel like I've been heavily poisoned. I know I haven't, i just feel like this is what poisoning would be like

 

[November Girl]

I apologize if you've already mentioned this. Have you been evaluated for a seizure disorder? Mine was under-treated for 20 years. It masked the absence seizures, but my brain kept having seizures that I didn't recognize. It's amazing how much my brain has healed in the few years that the seizures have been under control.

 

[wastwater]

I had wondered about this for myself,absence seizures,but it seems to be impossible to get tested for anything here.I got a non professional to do a crude eeg and it showed some problem with left temporal lobe but it wasn't followed up as it wasn't nhs approved the place I visited.

 

[November Girl]

left temporal lobe was where mine initially showed up. In my case a major motor vehicle accident either caused the seizure disorder, or accelerated to the point that I had absence seizures. A seizure is an electrical storm in your brain. It doesn't always produce obvious symptoms, though sensory hallucinations are common. e.g. feeling that a limb is much larger than it actually is

 

[wastwater]

What do you use to control the seizures and if its medication are there any side effects

 

[wastwater]

Mine was likely a viral injury or reaction to virus,immune injury.Measels (vaccine) may of caused sensori neural left sided deafness too.ADEM was mentioned Acute disseminated encephalomyelitis

 

[Aerose91]

I apologize if you've already mentioned this. Have you been evaluated for a seizure disorder? Mine was under-treated for 20 years. It masked the absence seizures, but my brain kept having seizures that I didn't recognize. It's amazing how much my brain has healed in the few years that the seizures have been under control.

I'm nit sire TBH. I've had 2 eeg's and a couple MRIs and we'll as a SPECT. the MRIs were clean but the EEG's showed significant slowing and the SPECT showed lots and lots of hypoperfusion. Despite feeling like I've had a couple seizures no one has told me they suspected that.